HÅBETS VÆSEN
HVORDAN HÅB FORSTÅS, PRAKTISERES OG ERFARES BLANDT PERSONER MED ERHVERVET HJERNESKADE, PÅRØRENDE OG FAGPROFESSIONELLE I NEURO-REHABILITERING
DOI:
https://doi.org/10.7146/pl.v47i1.171930Nøgleord:
håb, håbløshed, erhvervet hjerneskade, rehabilitering, håbets fænomenologiResumé
Håb er noget basalt i den menneskelige tilværelse. Det rummer et iboende paradoks: håb kan være til stede, selv hvor alt håb synes ude. Håb er et lille undseligt ord, som kan synes tavst og usynligt i hverdagen. Men når livet tager en drejning, og alvorlig sygdom indtræffer, kan håb give livskraft. Samtidig kan håbet også trues i svære livssituationer. Artiklen bygger på et halvt års etnografisk feltarbejde blandt personer med erhvervet hjerneskade, deres pårørende og fagprofessionelle i neuro-rehabilitering. Artiklen søger at “unmute” håbet ved at indkredse dets væsen empirisk – ikke blot som teoretisk begreb, men som et levet og erfaret fænomen. Informanter finder håbets skål for evigt tilgængelig, en drivkraft, der får os til at handle, til at fortsætte livet. Håb fremstår som tavst og strukturelt usynligt i praksis, men samtidig nærværende som en implicit og kropsligt forankret dimension. Håb kultiveres og forhandles i rehabiliteringspraksis, det næres og bæres i relationer. Håbet rummer også en sårbarhed, det kan tæres og må understøttes i rehabilitering.
Referencer
Antelius, E. (2007). The Meaning of the Present: Hope and Foreclosure in Narrations about People with Severe Brain Damage. Medical Anthropology Quarterly, 21(3), 324-342. https://doi.org/10.1525/maq.2007.21.3.324
Bissell, D. (2007). Animating Suspension: Waiting for Mobilities. Mobilities, 2(2), 277298. https://doi.org/10.1080/17450100701381581
Bloch, E. (1996). The Principle of Hope. The MIT Press.
Boelsbjerg, H. B., Blond, N., & Høybye, M. T. (2026). Narrating hope among relatives to patients with disorders of consciousness. Social science & medicine (1982), 389, 118783. https://doi.org/10.1016/j.socscimed.2025.118783
Bright, F. A. S., McCann, C. M., & Kayes, N. M. (2020). Recalibrating hope: A longitudinal study of the experiences of people with aphasia after stroke. Scandinavian journal of caring sciences, 34(2), 428-435. https://doi.org/10.1111/scs.12745
Bryant, R., & Knight, D. M. (2019). The Anthropology of the Future. Cambridge University Press. https://doi.org/DOI:10.1017/9781108378277
Crapanzano, V. (2004). Imaginative Horizons: An Essay in Literary-philosophical Anthropology. University of Chicago Press. https://doi.org/10.7208/chicago/9780226118758.001.0001
Cullberg, J. (2007). Krise og udvikling (5. udgave, red.). Hans Reitzel.
Desjarlais, R. R. (2019). The Blind Man A Phantasmography (1. udgave, red.). Fordham University Press. https://doi.org/10.1515/9780823281145
Dufault, K., & Martocchio, B. C. (1985). Hope: Its Spheres and Dimensions. Nursing Clinics of North America, 20(2), 379-391. https://doi.org/https://doi.org/10.1016/S0029-6465(22)00328-0
Frankl, V. E. (2006). Man’s search for meaning (4. udgave). Beacon Press.
Good, B. J. (1994). Medicine, Rationality and Experience : An Anthropological Perspective. Cambridge University Press. https://doi.org/10.1017/CBO9780511811029
Graven, V., & Brødslev Olsen, J. (2018). Hvor der er håb: fra teori til sundhedsfaglig praksis [Where there is hope: From theory to health care practice] (1. udgave, red.). Samfundslitteratur.
Hammersley, M., & Atkinson, P. (2007). Ethnography: Principles in Practice. Routledge.
Hansen, H. P., & Tjørnhøj-Thomsen, T. (2014). Kræft og Håbsarbejde [Cancer and HopeWork]. Tidsskrift for Forskning i Sygdom og Samfund, 11(20). https://doi.org/10.7146/tfss.v11i20.17225
Hjerneskadeforeningen. (2026). Hjerneskade i tal. https://hjerneskadet.dk/viden-omhjerneskade/hjerneskader-i-tal/
Jackson, M. D. (2012). Between one and one another (1. udgave). University of California Press. https://doi.org/10.1002/j.sda2.20130302.00014
Jain, S. L. (2007). Living in Prognosis: Toward an Elegiac Politics. Representations (Berkeley, Calif.), 98(1), 77-92. https://doi.org/10.1525/rep.2007.98.1.77
Janeja, M. K., & Bandak, A. (2018). Ethnographies of Waiting: Doubt, Hope and Uncertainty (1. udgave, red.). Bloomsbury Publishing Plc. https://doi.org/10.5040/9781474280273
Jansen, S., & Thorne, J. (2026). Hope in Anthropology. I: The Oxford Compendium of Hope (s. 573-586). Oxford University Press. https://doi.org/10.1093/oso/9780197618240.003.0034
Larsen, D., Edey, W., & Lemay, L. (2007). Understanding the role of hope in counselling: Exploring the intentional uses of hope. Counselling psychology quarterly, 20(4), 401416. https://doi.org/10.1080/09515070701690036
Larsen, D. J., & Stege, R. (2010). Hope-Focused Practices During Early Psychotherapy Sessions: Part I: Implicit Approaches. Journal of psychotherapy integration, 20(3), 271-292. https://doi.org/10.1037/a0020820
Larsen, D. J., Stege, R., Edey, W., & Ewasiw, J. (2014). Working with unrealistic or unshared hope in the counselling session. British journal of guidance & counselling, 42(3), 271-283. https://doi.org/10.1080/03069885.2014.895798
Larsen, M. M., Graven, V., Tonnesen, M., Larsen, D., & Thuesen, J. (Forthcoming). Mapping interventions on hope in the field of rehabilitation and supportive palliative care targeted people affected by cancer, acquired brain injury or Parkinson’s disease: a scoping review
Madden, R. (2010). Being ethnographic: a guide to the theory and practice of ethnography. SAGE.
Marcel, G. (1951). Homo Viator: Introduction to a Metaphysic of Hope. H. Regnery Company.
Maribo, T., Ibsen, C. T., Jette, Nielsen, C. V., Johansen, J., & Vind, A. (2022). Hvidbog om rehabilitering (1. udgave, red.). Rehabiliteringsforum Danmark.
Mattingly, C. (2010). The Paradox of Hope: Journeys through a Clinical Borderland. University of California Press. https://doi.org/10.1525/9780520948235
Mattingly, C. (2022). The Gift. I: C. Mattingly, & L. Grøn (red.). Imagistic Care (s. 31-58). Fordham University Press. https://doi.org/10.5422/fordham/9780823299645.003.0002
Moore, H. L. (2011). Still Life: Hopes, Desires and Satisfactions. Polity.
Nejst, C. H., Bredewold, F., Baart, A., & Glintborg, C. (2025). Relational rehabilitation: competencies and qualities needed in psychosocial rehabilitation when responding to hope and hopelessness. Medicine, health care, and philosophy. https://doi.org/10.1007/s11019-025-10310-6
Odgaard, M. R. B. (2025). The art of queering the ordinary canceled concerts, broken eggs, and artistic attunement to ethical life in Amman, Jordan. Anthropology and humanism, 50(2), n/a. https://doi.org/10.1111/anhu.70050
Olsman, E. (2020). Hope in Health Care: A Synthesis of Review Studies. I: S. C. van den Heuvel (red.). Historical and Multidisciplinary Perspectives on Hope (s. 197-214). Springer International Publishing. https://doi.org/10.1007/978-3-030-46489-9_11
Pink, S. (2009). Doing Sensory Ethnography. In (1. udgave). SAGE Publications. https://doi.org/10.4135/9781446249383
Pink, S., Winthereik, B. R., & Ballestero, A. (2022). The Ethnographic Hunch. In (s. 3040). Duke University Press. https://doi.org/10.1515/9781478091691-005
Snyder, C. R., Lehman, K. A., Kluck, B., & Monsson, Y. (2006). Hope for Rehabilitation and Vice Versa. Rehabilitation Psychology, 51(2), 89-112. https://doi.org/10.1037/0090-5550.51.2.89
Soundy, A., Smith, B., Dawes, H., Pall, H., Gimbrere, K., & Ramsay, J. (2013). Patient’s expression of hope and illness narratives in three neurological conditions: a metaethnography. Health psychology review, 7(2), 177-201. https://doi.org/10.1080/17437199.2011.568856
Tonnesen, M., & Nielsen, C. V. (2024). Hope and Haunting Images: The Imaginary in Danish Parkinson’s Disease Rehabilitation. Medicine Anthropology Theory, 11(3), 1-25. https://doi.org/10.17157/mat.11.3.7486
Tonnesen, M., Warren, N., & Graven, V. (2026). Relative Hope, Relative Care: Parkinson’s Disease Family Carers on Hope and Evolving Care. Qualitative health research, 10497323261440852. https://doi.org/10.1177/10497323261440852
Wade, D. (2024). Hope in rehabilitation: an overlooked asset? https://rehabilitationmatters.com/hope-in-rehabilitation-an-overlooked-asset/
Webb, D. (2007). Modes of Hoping. History of the human sciences, 20(3), 65-83. https://doi.org/10.1177/0952695107079335
Weinberg, C. M. (2013). Hope, Meaning, and Purpose: Making Recovery Possible. Psychiatric rehabilitation journal, 36(2), 124-125. https://doi.org/10.1037/prj0000011
Downloads
Publiceret
Citation/Eksport
Nummer
Sektion
Licens
Ophavsret er tidsskriftets og forfatternes. Det er gældende praksis, at artikler publiceret i Psyke & Logos, som efterfølgende oversættes til andet sprog, af forfatteren frit kan publiceres i internationale tidsskrifter, dog således at det ved reference fremgår, at den oversatte artikel har et forlæg i en dansksproget version i Psyke & Logos. Artikler kan frit deles og linkes til på forsknings- og undervisningsnetværk (så som Blackboard). Link foretrækkes, fordi det giver oplysning om brug af tidsskriftets artikler.
