An empty review
Participation in communities and associations after an acquired brain injury
DOI:
https://doi.org/10.7146/pl.v46i1.157739Keywords:
community, brain injury, rehabilitation, psychosocial, reviewAbstract
Communities are a prominent topic and there is broad consensus on their importance. The ability to participate in and be part of meaningful communities on an equal footing is a central aspect of life. However, communities are reduced to illness communities within the context of rehabilitation. It is vital to focus on the involvement of general communities as part of the rehabilitation,
as general communities can serve as bridges to local communities, facilitating and supporting community reintegration. To identify the significance of communities, we will examine the importance of participation in association-like communities after an acquired brain injury. This review has been conducted as a scoping review, focusing on the phenomenon of association-like communities and the importance of participation in these for people with an acquired brain injury (ABI). The review addresses the following question: What is the significance of participating in association-like communities after an acquired brain injury? The systematic search identified no studies that met the inclusion criteria. Given the lack of identification of relevant studies, the concept of association-
like communities and their significance for people with an ABI is discussed, along with how knowledge from other areas can inform future research.
References
Aarup, K. (2017). Fra udenforskab til fællesskab. Seks bud på et bedre velfærdssamfund. Jurist- og Økonomforbundets Forlag.
Ahrensberg, H., Jørgensen, A., Rasmussen, M., Eghøj, M., Toftager, M. & Petersen, C. (2024). Når Bevægelse Bevæger. En evaluering af deltagelse i Team Tvilling og Cykling uden alder. Statens Institut for Folkesundhed, SDU.
Andersson, S.G. & Haugegaard, S.H. (2023). Fællesskaber for alle: Seks foreningers erfaringer med at gøre mennesker i udsatte positioner til medskabere af frivillige foreningsfællesskaber. Socialt Udviklingscenter.
Barclay, L., McDonald, R., Lentin, P. & Bourke-Taylor, H. (2016). Facilitators and barriers to social and community participation following spinal cord injury. Australian Occupational Therapy Journal, 63(1), 19-28. https://doi.org/10.1111/1440-1630.12241
Bennike S., Andersen, T.R. & Krustrup, P. (red.). Fodbold som forebyggelse og behandling – En hvidbog med fokus på 10 udvalgte lidelser og risikotilstande. Dansk Boldspil-Union & Syddansk Universitet, 2024.
Berliner, P. (2005). Hvad er community psykologi? I: P. Berliner (red.), At fare vild – sammen. Introduktion til community psykologi (s. 15-56). Frydenlund.
Berliner, P. (2014). Community psykologi. I: P. Berliner (red.), Fællesskaber – en antologi om community psykologi (s. 7-14). Frydenlund.
Bier, N., Dutil, E. & Couture, M. (2009). Factors affecting leisure participation after a traumatic brain injury: an exploratory study. The Journal of Head Trauma Rehabilitation, 24(3), 187-194. https://doi.org/10.1097/HTR.0b013e3181a0b15a
Booth, A., Sutton, A. & Papaioannou, D. (2016). Systematic approaches to a successful literature review (2. ed.). Sage.
Callaway, L., Winkler, D., Tippett, A., Herd, N., Migliorini, C., & Willer, B. (2016). The Community Integration Questionnaire – Revised: Australian normative data and measurement of electronic social networking. Australian Occupational Therapy Journal, 63(3), 143–153. https://doi.org/10.1111/1440-1630.12284
Carbonneau, H., Martineau, É, Andre, M. & Dawson, D. (2011). Enhancing leisure experiences post traumatic brain injury: A pilot study. Brain Impairment, 12(2). 140-151. https://doi.org/10.1375/brim.12.2.140
Cieza, A., Causey, K., Kamenov, K., Hanson, S. W., Chatterji, S., & Vos, T. (2021). Global estimates of the need for rehabilitation based on the Global Burden of Disease study 2019: a systematic analysis for the Global Burden of Disease Study 2019. Lancet (London, England), 396(10267), 2006–2017. https://doi.org/10.1016/S0140-6736(20)32340-0
Ciria, L.F., Román-Caballero, R., Vadillo, M.A., Holgado, D., Luque-Casado, A., Perakakis, P. & Sanabria, D. (2023). An umbrella review of randomized control trials on the effects of physical exercise on cognition. Nat Hum Behav, 7, 928-941. https://doi.org/10.1038/s41562-023-01554-4
Costin, V. & Vignoles, V.L. (2020). Meaning is about mattering: evaluating coherence, purpose, and existential mattering as precursors of meaning in life judgments. Journal of Personality and Social Psychology, 118(4), 864-884. https://doi.org/10.1037/pspp0000225
Crone D.M, O’Connell, E.E, Tyson, P.J, Clark-Stone, F., Opher, S. & James, D.V. (2013). “Art Lift” intervention to improve mental well-being: an observational study from U.K. general practice. International Journal of Mental Health Nursing, 22(3). 144(6), 363-368. https://doi.org/10.1111/j.1447-0349.2012.00862.x
Curtin, M., Jones, J., Tyson, G.A., Mitsch, V., Alston, M. & McAllister, L. (2011). Outcomes of participation objective participation subjective (POPS) measure following traumatic brain injury. Brain Injury, 25(3), 266-273. https://doi.org/10.3109/02699052.2010.542793
De la Mata-Benítez, M., Santamaría, A., Pérez, M. & Cubero, R. (2020). Narrative identity is social context. I: C. Glintborg & M. de la Mata-Benítez (2020). Identity construction and illness narratives in persons with disabilities. Routledge. https://doi.org/10.4324/9781003021612
Desrosiers, J., Rochette, A., Noreau, L., Bourbonnais, D., Bravo, G. & Bourget, A. (2006). Long-term changes in participation after stroke. Topics in Stroke Rehabilitation, 13(4), 86-96. https://doi.org/10.1310/tsr1304-86
Dezutter, J., Casalin, S., Wachholtz, A., Luyckx, K., Hekking, J. & Vandewiele, W. (2013). Meaning in life: an important factor for the psychological well-being of chronically ill patients? Rehabilitation psychology, 58(4), 334-341. https://doi.org/10.1037/a0034393
Ditchman, N., Chan, F., Haak, C. & Easton, A.B. (2017). Factors impacting sense of community among adults with brain injury. Rehabilitation Psychology, 62(2), 130-142. https://doi.org/10.1037/rep0000139
Douglas, J., Dyson, M. & Foreman, P. (2006). Increasing leisure activity following severe traumatic brain injury: does it make a difference? Brain Impairment, 7, 107-118. https://doi.org/10.1375/brim.7.2.107
Drummond A. (1990). Leisure activity after stroke. International Disability Studies, 12(4), 157-160. https://doi.org/10.3109/03790799009166608
Fleming, J., Braithwaite, H., Gustafsson, L., Griffin, J., Collier, A.M. & Fletcher, S. (2011). Participation in leisure activities during brain injury rehabilitation. Brain injury, 25(9), 806-818. https://doi.org/10.3109/02699052.2011.585508
Gerber, G.J. & Gargaro, J. (2015). Participation in a social and recreational day programme increases community integration and reduces family burden of persons with acquired brain injury. Brain Injury, 29(6), 722-729. https://doi.org/10.3109/02699052.2015.1004745
Gracey, F., Palmer, S., Rous, B., Psaila, K., Shaw, K., O’Dell, J., Cope, J. & Mohamed, S. (2008). “Feeling part of things”: personal construction of self after brain injury. Neuropsychological Rehabilitation, 18(5-6), 627-650. https://doi.org/10.1080/09602010802041238
Grant, M.J. & Booth, A. (2009). A typology of reviews: an analysis of 14 review types and associated methodologies. Health Information and Libraries Journal, 26(2), 91-108. https://doi.org/10.1111/j.1471-1842.2009.00848.x
Ibsen, B. & Seippel, Ø. (2010). Voluntary organized sport in Denmark and Norway. Sport in Society, 13(4), 593-608. https://doi.org/10.1080/17430431003616266
Jamieson, M., Jack, R., O’Neill, B., Cullen, B., Lennon, M., Brewster, S. & Evans, J. (2020). Technology to encourage meaningful activities following brain injury. Disability and Rehabilitation. Assistive Technology, 15(4), 453-466. https://doi.org/10.1080/17483107.2019.1594402
Jensen, A. (2018). Kulturvitaminer – et kultur på recept-projekt i Aalborg. Forskningsrapport
Jensen, A. (2022). Kultur og Sundhed: et mangfoldigt felt. Forskning, teori og praksis. Forlaget Klim
Joanna Briggs Institute 2011, Joanna Briggs Institute Reviewers’ Manual 2011, The University of Adelaide, South Australia.
Juengst, S.B., Erler, K.S., Neumann, D., Kew, C.L., Goldin, Y., O’Neil-Pirozzi, T.M., Rabinowitz, A., Niemeier, J., Bushnik, T. & Dijkers, M. (2022). Participation importance and satisfaction across the lifespan: a traumatic brain injury model systems study. Rehabilitation Psychology, 67(3), 344-355. https://doi.org/10.1037/rep0000421
Kersey, J., McCue, M. & Skidmore, E. (2020). Domains and dimensions of community participation following traumatic brain injury. Brain Injury, 34(6), 708-712. https://doi.org/10.1080/02699052.2020.1757153
Kersey, J., Terhorst, L., Heinemann, A.W., Hammel, J., Baum, C., McCue, M. & Skidmore, E.R. (2022). Construct validity of the enfranchisement scale of the community participation indicators. Clinical Rehabilitation, 36(2), 263-271. https://doi.org/10.1177/02692155211040930
Labbé, D., Miller, W.C. & Ng, R. (2018). Participating more, participating better: health benefits of adaptive leisure for people with disabilities. Disability and Health Journal, 12, 287-295. https://doi.org/10.1016/j.dhjo.2018.11.007
Lang A., Edwards N. & Fleiszer, A. (2007). Empty systematic reviews: hidden perils and lessons learned. J Clin Epidemiol, 60, 595-597. https://doi.org/10.1016/j.jclinepi.2007.01.005
Larsen, S., Ottesen, L. & Hansen, H. (2020) Implementering af brobygning – fra kommunalt træningsforløb til idrætsforeninger og idrætsfællesskaber. Center for Holdspil og Sundhed, sektionen Idræt, individ og samfund, Institut for Idræt og Ernæring, Københavns Universitet. https://nexs.ku.dk/english/research-files/chs/WEB_Implementering_af_brobygning.pdf
Lavelle Sachs, A., Kolster, A., Wrigley, J., Papon, V., Opacin, N., Hill, N., Howarth, M., Rochau, U., Hidalgo, L., Casajuana, C., Siebert, U., Gerhard, J., Daher, C. & Litt, J. (2024). Connecting through nature: a systematic review of the effectiveness of nature-based social prescribing practices to combat loneliness. Landscape and Urban Planning, 248, 105071. https://doi.org/10.1016/j.landurbplan.2024.105071
Lauveng, A., Tveiten, S., Ekeland, T.J. & Torleif, R. (2016). Treating symptoms or assisting human development: can different environmental conditions affect personal development for patients with severe mental illness? A qualitative study. International Journal of Mental Health Systems, 10, 8. https://doi.org/10.1186/s13033-016-0041-2
Leeson, R., Collins, M. & Douglas, J. (2023). Interventions that aim to increase social participation through recreation or leisure activity for adults with moderate to severe traumatic brain injury: a scoping review. Disability and Rehabilitation, 1-17. https://doi.org/10.1080/09638288.2023.2246377
Malley, D., Cooper, J. & Cope, J. (2008). Adapting leisure activity for adults with neuropsychological deficits following acquired brain injury. NeuroRehabilitation, 23(4), 329-334.
Mamman, R., Mortenson, W.B., Fleming, J. & Schmidt, J. (2022). Living in a reshaped reality: exploring social participation and self-identity after TBI. Neuropsychological Rehabilitation, 32(8), 2102-2124. https://doi.org/10.1080/09602011.2022.2113100
Maribo, T., Ibsen, C., Thuesen, J., Nielsen, C.V., Johansen, J.S. & Vind, A.B. (red.) (2022). Hvidbog om rehabilitering, 1. udgave. Rehabiliteringsforum Danmark, Aarhus.
Mazaux, J.M. & Richer, E. (1998). Rehabilitation after traumatic brain injury in adults. Disability and Rehabilitation, 20(12), 435-447. https://doi.org/10.3109/09638289809166108
Meilstrup C.B., Nielsen L., Nelausen M.K., Kusier A.O., Hinrichsen C., Santini Z.I. & Schou-Juul F. (2022). ABC for mental sundhed – mental sundhedsfremme for alle. ABCformentalsundhed_mentalsundhedsfremmeforalle.pdf
Meyer T., Kiekens, C., Selb, M., Posthumus, E. & Negrini, S. (2020). Toward a new definition of rehabilitation for research purposes: a comparative analysis of current definitions. Eur J Phys Rehabil Med, 56(5), 672-681.
Muldoon, O. T., Walsh, R. S., Curtain, M., Crawley, L., & Kinsella, E. L. (2019). Social cure and social curse: Social identity resources and adjustment to acquired brain injury. European Journal of Social Psychology, 49(6), 1272–1282. https://doi.org/10.1002/ejsp.2564
Munn, Z., Peters, M.D.J., Stern, C., Tufanaru, C., McArthur, A. & Aromataris, E. (2018). Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol, 18, 143. https://doi.org/10.1186/s12874-018-0611-x
Månsson, A., Glintborg, C., Jensen, K.A. & Vejle, C.S., (2025). Skydeidræt som rehabiliterende indsats for personer med en erhvervet hjerneskade. Et kvalitativt studie med fokus på betydningen af deltagelse i almene fællesskaber. Psyke & Logos, 46(1).
Månsson, A. (2021). DGI Hjerne-FOKUS Evaluerings- og overleveringsrapport. DGI. Norlander, A., Iwarsson, S., Jönsson, A.C., Lindgren, A. & Månsson Lexell, E. (2022). Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective. Disability and Rehabilitation, 44(16), 4284-4292. https://doi.org/10.1080/09638288.2021.1900418
Parr, M.G. & Lashua, B.D. (2004). What is leisure? The perceptions of recreation practitioners and others. Leisure Sciences, 26(1), 1-17. https://doi.org/10.1080/01490400490272512
Philippus, A., Ketchum, J.M., Payne, L., Hawley, L. & Harrison-Felix, C. (2020). Volunteering and its association with participation and life satisfaction following traumatic brain injury. Brain Injury, 34(1), 52-61. https://doi.org/10.1080/02699052.2019.1679886
Proctor, C.J. & Best, L.A. (2019). Social and psychological influences on satisfaction with life after brain injury. Disability and Health Journal, 12(3), 387-393. https://doi.org/10.1016/j.dhjo.2019.01.001
Sander, A.M., Pappadis, M.R., Clark, A.N. & Struchen, M.A. (2011). Perceptions of community integration in an ethnically diverse sample. The Journal of Head Trauma Rehabilitation, 26(2), 158-169. https://doi.org/10.1097/HTR.0b013e3181e7537e
Santini, Z.I., Jose, P.E., Koyanagi, A., Meilstrup, C., Nielsen, L., Madsen, K.R. & Koushede, V. (2020). Formal social participation protects physical health through enhanced mental health: a longitudinal mediation analysis using three consecutive waves of the Survey of Health, Ageing and Retirement in Europe (SHARE). Social Science & Medicine, (1982), 251, 112906. https://doi.org/10.1016/j.socscimed.2020.112906
Steger, M.F. (2009). Meaning in life. I: S.J. Lopez & C.R. Snyder (red.), Oxford handbook of positive psychology (2nd ed., s. 679-687). Oxford University Press.
Stigmar, K., Årstrom, M., Sarbast, S. & Peterson, I. (2016). Kultur på recept 2.0. Lunds universitet.
Sumner, R.C., Crone, D.M., Hughes, S., James, D.V.B. (2021). Arts on Prescription: observed changes in anxiety, depression, and well-being across referral cycles. Public Health, 192.
Tomlinson, A., Lane, J., Julier, G., Grigsby-Duffy, L., Payne, A., Mansfield, L., Kay, T., John, A., Meads, C., Daykin, N., Golding, A. & Victor, C. (2020). Qualitative findings from a systematic review: visual arts engagement for adults with mental health conditions. Journal of Applied Arts and Health, 11(3).
Tricco, A.C., Lillie, E., Zarin, W., O’Brien, K.K., Colquhoun, H., Levac, D., … Straus, S.E. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Annals of Internal Medicine, 169(7), 467-473. https://doi.org/10.7326/M18-0850
Tricco, A. C., Zarin, W., Ghassemi, M., Nincic, V., Lillie, E., Page, M.J., Shamseer, L., Antony, J., Rios, P., Hwee, J., Veroniki, A.A., Moher, D., Hartling, L., Pham, B. & Straus, S.E. (2018). Same family, different species: methodological conduct and quality varies according to purpose for five types of knowledge synthesis. Journal of Clinical Epidemiology, 96, 133-142. https://doi.org/10.1016/j.jclinepi.2017.10.014
Wanneberg, P.L. (2014). Disability, riding, and identity: a qualitative study on the influence of riding on the identity construction of people with disabilities. International Journal of Disability, Development and Education, 61(1), 67-79. https://doi.org/10.1080/1034912X.2014.878543
Wise, E.K., Mathews-Dalton, C., Dikmen, S., Temkin, N., Machamer, J., Bell, K. & Powell, J.M. (2010). Impact of traumatic brain injury on participation in leisure activities. Archives of Physical Medicine and Rehabilitation, 91(9), 1357-1362. https://doi.org/10.1016/j.apmr.2010.06.009
Yaffe, J., Montgomery, P., Hopewell, S. & Shepard, L.D. (2012). Empty reviews: a description and consideration of Cochrane systematic reviews with no included studies. PloS one, 7(5), e36626. https://doi.org/10.1371/journal.pone.0036626
Østerlund, K. & Seippel, Ø. (2013). Does membership in civil society organizations foster social integration? The case of danish voluntary sport organizations. Journal of Civil Society, 9(4), 391-413. https://doi.org/10.1080/17448689.2013.847548
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