Vol. 23 No. 41 (2024): Care Under Change 2: The Relations of Care
Originalartikler

Online omsorg for patienter med kroniske lidelser: en dynamisk og temporal omsorgspraksis i patientorganiserede fællesskaber på sociale medier

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  • Loni Ledderer,
  • Amanda Karlsson,
  • Carsten Stage
Loni Ledderer
Department of Public Health, Aarhus University
Bio
Amanda Karlsson
Institut for Kommunikation og Kultur, Aarhus Universitet
Bio
Carsten Stage
Institut for Kommunikation og Kultur, Aarhus Universitet
Bio
DOI: https://doi.org/10.7146/tfss.v23i41.140253

Published 2024-12-03 — Updated on 2024-12-06

Versions

Keywords

  • online care,
  • sociale media,
  • peer to peer,
  • kronisk lidelse

How to Cite

Ledderer, L., Karlsson, A., & Stage, C. (2024). Online omsorg for patienter med kroniske lidelser: en dynamisk og temporal omsorgspraksis i patientorganiserede fællesskaber på sociale medier . Tidsskrift for Forskning I Sygdom Og Samfund - Journal of Research in Sickness and Society, 23(41). https://doi.org/10.7146/tfss.v23i41.140253 (Original work published December 3, 2024)

Copyright (c) 2024 Loni Ledderer, Amanda Karlsson, Carsten Stage

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

Abstract

The responsibility of care has traditionally been associated with the welfare state and health professionals. However, care for patients with chronic diseases is under pressure in today's healthcare system and welfare state. In a time of social media, it becomes essential to extend the traditional understanding of care practices and explore the roles and characteristics of online care practices. The aim of this article is to understand how care practices are produced in peer-led online communities and how social media affects the production of particular forms of care. The article analyses empirical material from two different types of Danish peer-led online communities for patients with chronic conditions and consists of data from an online survey and semi-structured interviews with 21 members/followers.

This article offers a nuanced understanding of care practices that take place on social media in peer-led online communities on two aspects: 1) Online care practices are adaptable to dynamic and continuously changing needs for care and open to shifting roles 2) Online care practices are extremely flexible as they have no fixed time structures and are available around the clock, especially at night when relatives are at sleep and the established health system is closed. The article contributes to the understanding of online care practices by showing that it is a special form of care characterised by its adaptability and temporal flexibility.

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