Årg. 23 Nr. 41 (2024): Omsorg Under Forandring 2: Omsorgens Relationer
Originalartikler

Online omsorg for patienter med kroniske lidelser: en dynamisk og temporal omsorgspraksis i patientorganiserede fællesskaber på sociale medier

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  • Loni Ledderer,
  • Amanda Karlsson,
  • Carsten Stage
Loni Ledderer
Department of Public Health, Aarhus University
Bio
Amanda Karlsson
Institut for Kommunikation og Kultur, Aarhus Universitet
Bio
Carsten Stage
Institut for Kommunikation og Kultur, Aarhus Universitet
Bio
DOI: https://doi.org/10.7146/tfss.v23i41.140253

Publiceret 2024-12-03 — Opdateret d. 2024-12-06

Versioner

Nøgleord

  • online care,
  • sociale media,
  • peer to peer,
  • kronisk lidelse

Citation/Eksport

Ledderer, L., Karlsson, A., & Stage, C. (2024). Online omsorg for patienter med kroniske lidelser: en dynamisk og temporal omsorgspraksis i patientorganiserede fællesskaber på sociale medier . Tidsskrift for Forskning I Sygdom Og Samfund, 23(41). https://doi.org/10.7146/tfss.v23i41.140253 (Original work published 3. december 2024)

Copyright (c) 2024 Loni Ledderer, Amanda Karlsson, Carsten Stage

Creative Commons License

Dette værk er under følgende licens Creative Commons Navngivelse –Ikke-kommerciel (by-nc).

Resumé

Ansvaret for omsorg har traditionelt været forbundet med velfærdsstaten og de sundhedsprofessionelle. Imidlertid er omsorg for patienter med kroniske sygdomme under pres i nutidens sundhedsvæsen og velfærdsstat. I en tid hvor sociale medier spiller en stigende rolle i hverdagslivet er det helt centralt at undersøge, hvordan fællesskaber på sociale medier skaber omsorg på nye måder. Formålet med denne artikel er at analysere den omsorg, som praktiseres i patientorganiserede fællesskaber på sociale medier for patienter med kroniske lidelser. Vi analyserer empirisk materiale fra to forskellige typer af danske patientorganiserede online grupper for patienter med kroniske lidelser, som består af data fra en online spørgeskemaundersøgelse og semistrukturerede interviews med 21 medlemmer/ følgere.
Denne artikel udfolder særlige karakteristika ved den omsorgspraksis, der finder sted i patientorganiserede fællesskaber på sociale medier på to områder: 1) Online omsorg kan matche foranderlige behov for omsorg og brugerne kan indtage rollen som både omsorgsgiver og -modtager, 2) Online omsorg er temporalt fleksibelt, fordi den ikke har faste tidsstrukturer og er tilgængelig døgnet rundt. Artiklen bidrager til eksisterende forskning ved at vise hvordan online omsorgspraksisser er fleksibelt tilgængelige og kan imødekomme dynamiske og skiftende behov.

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