Vol. 21 No. 39 (2023): Patient Reported Outcomes
Originalartikler

Eksistentiel og åndelig omsorg i post-sekulære kontekster: et integrativt review af spørgeskemaer

PDF (Dansk)
  • Ricko Nissen,
  • Erik Falkø,
  • Tobias Kvist Stripp,
  • Niels Christian Hvidt
Ricko Nissen
Syddansk Universitet
Niels Christian Hvidt
Syddansk Universitet, Forskningsenheden for almen praksis
DOI: https://doi.org/10.7146/tfss.v21i39.133822

Published 2023-12-07

Keywords

  • åndelig omsorg,
  • religion,
  • spiritualitet,
  • sekulær,
  • post-sekulær,
  • spørgeskema
    • ...More
    Less

How to Cite

Nissen, R., Falkø, E., Kvist Stripp, T., & Hvidt, N. C. (2023). Eksistentiel og åndelig omsorg i post-sekulære kontekster: et integrativt review af spørgeskemaer. Tidsskrift for Forskning I Sygdom Og Samfund - Journal of Research in Sickness and Society, 21(39). https://doi.org/10.7146/tfss.v21i39.133822
Copyright Notice

Abstract

Forskning på tværs af sundhedsområder har vist, at eksistentiel og åndelig omsorg kan være til stor gavn for patienter. Det kan imidlertid være en udfordring at indarbejde denne omsorg i daglig praksis, ikke mindst i post-sekulære, multikulturelle og pluralistiske kontekster, som eksempelvis den danske. Formålet med dette integrative review var at lokalisere, evaluere og diskutere spørgeskemaer, som fokuserer på eksistentielle og ESR behov. Elleve spørgeskemaer blev inkluderet, evalueret og diskuteret, med fokus på religiøst/spirituelt/eksistentielt ordvalg og formuleringer, lokale kulturelle og pluralistiske kontekster, og i forhold til anvendelighed i et sekulært sundhedsvæsen. Artiklen fokuserer på faktorer, der bør adresseres ved implementeringen af spørgeskemaer om eksistentielle og ESR behov i forskellige kulturelle og sproglige kontekster. Derved bidrager den til den internationale udvikling, udveksling og implementering af viden og erfaringer om bedste praksis indenfor eksistentiel og åndelig omsorg i post-sekulære kontekster.

PDF (Dansk)

References

  1. Administration, U. S. N. A. a. R. (2021). National Archives. Retrieved from https://www.archives.gov/founding-docs
  2. Ahrenfeldt, L. J., Möller, S., Andersen-Ranberg, K., Vitved, A. R., Lindahl-Jacobsen, R., & Hvidt, N. C. (2017). Religiousness and health in Europe. Eur J Epidemiol, 32(10), 921-929. doi:10.1007/s10654-017-0296-1
  3. al., N. e. (2011). Spiritual care in palliative care: working towards an EAPC Task Force.
  4. Alkier Gildberg F, B. S., Tingleff EB, Hounsgaard L. . (2015). Empirically Testing Thematic Analysis (ETTA): Methodological implications in textual analysis coding system. Nordisk Sygeplejeforskning, 5(2), 193-207.
  5. Andersen, A. H., Assing Hvidt, E., Hvidt, N. C., & Roessler, K. K. (2020). ‘Maybe we are losing sight of the human dimension’ – physicians’ approaches to existential, spiritual, and religious needs among patients with chronic pain or multiple sclerosis. A qualitative interview-study. Health Psychology and Behavioral Medicine, 8(1), 248-269. doi:10.1080/21642850.2020.1792308
  6. Attard, J., Baldacchino, D. R., & Camilleri, L. (2014). Nurses' and midwives' acquisition of competency in spiritual care: a focus on education. Nurse Educ Today, 34(12), 1460-1466. doi:10.1016/j.nedt.2014.04.015
  7. Austin, P., Macdonald, J., & MacLeod, R. (2018). Measuring Spirituality and Religiosity in Clinical Settings: A Scoping Review of Available Instruments. Religions, 9(3). doi:10.3390/rel9030070
  8. Balboni, M. J., Sullivan, A., Enzinger, A. C., Epstein-Peterson, Z. D., Tseng, Y. D., Mitchell, C., . . . Balboni, T. A. (2014). Nurse and physician barriers to spiritual care provision at the end of life. J Pain Symptom Manage, 48(3), 400-410. doi:10.1016/j.jpainsymman.2013.09.020
  9. Balboni, T. A., Paulk, M. E., Balboni, M. J., Phelps, A. C., Loggers, E. T., Wright, A. A., . . . Prigerson, H. G. (2010). Provision of spiritual care to patients with advanced cancer: associations with medical care and quality of life near death. J Clin Oncol, 28(3), 445-452. doi:10.1200/jco.2009.24.8005
  10. Bandini, J., Thiel, M., Meyer, E., Paasche-Orlow, S., Zhang, Q., & Cadge, W. (2018). INTERPROFESSIONAL SPIRITUAL CARE TRAINING FOR GERIATRIC CARE PROVIDERS. Innovation in Aging, 2(suppl_1), 963-963. doi:10.1093/geroni/igy031.3569
  11. Bar-Sela, G., Schultz, M. J., Elshamy, K., Rassouli, M., Ben-Arye, E., Doumit, M., . . . Silbermann, M. (2019). Training for awareness of one's own spirituality: A key factor in overcoming barriers to the provision of spiritual care to advanced cancer patients by doctors and nurses. Palliat Support Care, 17(3), 345-352. doi:10.1017/s147895151800055x
  12. Bash, A. (2004). Spirituality: the emperor's new clothes? J Clin Nurs, 13(1), 11-16. doi:10.1046/j.1365-2702.2003.00838.x
  13. Beaton, D. E., Bombardier, C., Guillemin, F., & Ferraz, M. B. (2000). Guidelines for the process of cross-cultural adaptation of self-report measures. Spine (Phila Pa 1976), 25(24), 3186-3191. doi:10.1097/00007632-200012150-00014
  14. Beaumont, J., Eder, K., & Mendieta, E. (2020). Reflexive secularization? Concepts, processes and antagonisms of postsecularity. European Journal of Social Theory, 23(3), 291-309. doi:10.1177/1368431018813769
  15. Berger, P. L. (2014). The Many Altars of Modernity. Boston/Berlin: De Gruyter.
  16. Berger, P. L. (2015). The Hospital: On the Interface Between Secularity and Religion. Society, 52(5), 410-412. doi:10.1007/s12115-015-9941-z
  17. Best, M., Butow, P., & Olver, I. (2016). Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers. J Clin Med, 5(9). doi:10.3390/jcm5090077
  18. Breemer, R. v. d., Casanova, J., and Wyller. . (2014). Secular and Sacred: The Scandinavian Case of Religion in Human Rights, Law and Public Space. Vandenhoeck and Ruprecht. Göttingen.
  19. Brintz, C. E., Birnbaum-Weitzman, O., Merz, E. L., Penedo, F. J., Daviglus, M. L., Fortmann, A. L., . . . Llabre, M. M. (2017). Validation of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being-expanded (FACIT-Sp-Ex) across English and Spanish-speaking Hispanics/Latinos: Results from the Hispanic Community Health Study/Study of Latinos Sociocultural Ancillary Study. Psychology of Religion and Spirituality, 9(4), 337-347. doi:10.1037/rel0000071
  20. Büssing, A. (2021a). Spiritual Needs in Research and Practice (A. Büssing Ed.): Palgrave macmillan.
  21. Büssing, A. (2021b). The Spiritual Needs Questionnaire in Research and Clinical Application: a Summary of Findings. Journal of Religion and Health. doi:10.1007/s10943-021-01421-4
  22. Büssing, A., Balzat, H. J., & Heusser, P. (2010). Spiritual needs of patients with chronic pain diseases and cancer - validation of the spiritual needs questionnaire. Eur J Med Res, 15(6), 266-273. doi:10.1186/2047-783x-15-6-266
  23. Büssing, A., Janko, A., Baumann, K., Hvidt, N. C., & Kopf, A. (2013). Spiritual Needs among Patients with Chronic Pain Diseases and Cancer Living in a Secular Society. Pain Medicine, 14(9), 1362-1373. doi:https://doi.org/10.1111/pme.12198
  24. Casanova, J. (2012). Are We Still Secular? Explorations on the Secular and the Post-Secular. In P. Nynäs, Lassander, M., & Utriainen, T. (Ed.), Post-Secular Society. New Jersey: Transaction Publishers.
  25. Chan, C. W., Wong, F. K., Yeung, S. M., & Sum, F. (2016). Holistic Health Status Questionnaire: developing a measure from a Hong Kong Chinese population. Health Qual Life Outcomes, 14, 28. doi:10.1186/s12955-016-0416-8
  26. Charmaz, K. (2014). Constructing Grounded Theory.
  27. Chen, J., Lin, Y., Yan, J., Wu, Y., & Hu, R. (2018). The effects of spiritual care on quality of life and spiritual well-being among patients with terminal illness: A systematic review. Palliat Med, 32(7), 1167-1179. doi:10.1177/0269216318772267
  28. Chochinov, H. M., Hassard, T., McClement, S., Hack, T., Kristjanson, L. J., Harlos, M., . . . Murray, A. (2008). The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care. J Pain Symptom Manage, 36(6), 559-571. doi:10.1016/j.jpainsymman.2007.12.018
  29. Damberg Nissen, R., Falkø, E., Toudal Viftrup, D., Assing Hvidt, E., Søndergaard, J., Büssing, A., . . . Hvidt, N. C. (2020). The Catalogue of Spiritual Care Instruments: A Scoping Review. Religions, 11(5), 252. Retrieved from https://www.mdpi.com/2077-1444/11/5/252
  30. Descola, P. (2014). Beyond Nature and Culture. Chicago & London: University of Chicago Press.
  31. Drummond, D. A., & Carey, L. B. (2019). Assessing Spiritual Well-Being in Residential Aged Care: An Exploratory Review. J Relig Health, 58(2), 372-390. doi:10.1007/s10943-018-0717-9
  32. Faull, K., & Hills, M. D. (2007). A spiritually-based measure of holistic health for those with disabilities: development, preliminary reliability and validity assessment. Disabil Rehabil, 29(13), 999-1010. doi:10.1080/09638280600926637
  33. Forsyth, B. H., Kudela, M. S., Levin, K., Lawrence, D., & Willis, G. B. (2007). Methods for Translating an English-Language Survey Questionnaire on Tobacco Use into Mandarin, Cantonese, Korean, and Vietnamese. Field Methods, 19(3), 264-283. doi:10.1177/1525822x07302105
  34. Fuente-Cobo, C., & Carabante-Muntada, J. M. (2018). Media and Religion in Spain: A Review of Major Trends. Journal of Religion, Media and Digital Culture, 7(2), 175-202. doi:https://doi.org/10.1163/21659214-00702003
  35. Galek, K., Flannelly, K. J., Vane, A., & Galek, R. M. (2005). Assessing a patient's spiritual needs: a comprehensive instrument. Holist Nurs Pract, 19(2), 62-69. doi:10.1097/00004650-200503000-00006
  36. Ghorbani, M., Mohammadi, E., Aghabozorgi, R., & Ramezani, M. (2021). Spiritual care interventions in nursing: an integrative literature review. Supportive Care in Cancer, 29(3), 1165-1181. doi:10.1007/s00520-020-05747-9
  37. Gijsberts, M. H. E., van der Steen, J. T., Hertogh, C., & Deliens, L. (2019). Spiritual care provided by nursing home physicians: a nationwide survey. BMJ Support Palliat Care. doi:10.1136/bmjspcare-2018-001756
  38. Gorski, P., Kim, DK, Torpey, J, VanAntwerpen J. (2012). The Post-Secular in Question: Religion in Contemporary Society: NYU Press.
  39. Grabenweger, R., & Paal, P. (2021). Spiritualität in der psychiatrischen Pflege – Begriffsanalyse und Vorschlag einer Arbeitsdefinition. Spiritual Care, 10(1), 53-62. doi:doi:10.1515/spircare-2019-0131
  40. Habermas, J. (2008). Notes on Post-Secular Society. New Perspectives Quarterly, 25(4), 17-29. doi:https://doi.org/10.1111/j.1540-5842.2008.01017.x
  41. Harrad, R., Cosentino, C., Keasley, R., & Sulla, F. (2019). Spiritual care in nursing: an overview of the measures used to assess spiritual care provision and related factors amongst nurses. Acta Biomed, 90(4-s), 44-55. doi:10.23750/abm.v90i4-S.8300
  42. Holbraad, M., & Pedersen, M. A. (2017). The Ontological Turn: An Anthropological Exposition. Cambridge: Cambridge University Press.
  43. Huguelet, P., & Koenig, H. G. (2009). Religion and Spirituality in Psychiatry. Cambridge: Cambridge University Press.
  44. Hvidt, N. C., Assing Hvidt, E., & la Cour, P. (2021). Meanings of "the existential" in a Secular Country: A Survey Study. J Relig Health. doi:10.1007/s10943-021-01253-2
  45. Hvidt, N. C., Nielsen, K. T., Kørup, A. K., Prinds, C., Hansen, D. G., Viftrup, D. T., . . . Wæhrens, E. E. (2020). What is spiritual care? Professional perspectives on the concept of spiritual care identified through group concept mapping. BMJ Open, 10(12), e042142. doi:10.1136/bmjopen-2020-042142
  46. Jim, H. S., Purnell, J. Q., Richardson, S. A., Golden-Kreutz, D., & Andersen, B. L. (2006). Measuring meaning in life following cancer. Qual Life Res, 15(8), 1355-1371. doi:10.1007/s11136-006-0028-6
  47. Jones, K. F., Paal, P., Symons, X., & Best, M. C. (2021). The content, teaching methods and effectiveness of spiritual care training for healthcare professionals: A mixed-methods systematic review. Journal of Pain and Symptom Management. doi:https://doi.org/10.1016/j.jpainsymman.2021.03.013
  48. Koenig, H. G. (2008). Concerns about measuring "spirituality" in research. J Nerv Ment Dis, 196(5), 349-355. doi:10.1097/NMD.0b013e31816ff796
  49. la Cour, P., & Hvidt, N. C. (2010). Research on meaning-making and health in secular society: secular, spiritual and religious existential orientations. Soc Sci Med, 71(7), 1292-1299. doi:10.1016/j.socscimed.2010.06.024
  50. Lo, C., Panday, T., Zeppieri, J., Rydall, A., Murphy-Kane, P., Zimmermann, C., & Rodin, G. (2017). Preliminary psychometrics of the Existential Distress Scale in patients with advanced cancer. Eur J Cancer Care (Engl), 26(6). doi:10.1111/ecc.12597
  51. Lucchetti, G., Bassi, R. M., & Lucchetti, A. L. (2013). Taking spiritual history in clinical practice: a systematic review of instruments. Explore (NY), 9(3), 159-170. doi:10.1016/j.explore.2013.02.004
  52. Moestrup, L., & Hvidt, N. C. (2016). Where is God in my dying? A qualitative investigation of faith reflections among hospice patients in a secularized society. Death Stud, 40(10), 618-629. doi:10.1080/07481187.2016.1200160
  53. Mokkink, L. B., de Vet, H. C. W., Prinsen, C. A. C., Patrick, D. L., Alonso, J., Bouter, L. M., & Terwee, C. B. (2018). COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures. Quality of Life Research, 27(5), 1171-1179. doi:10.1007/s11136-017-1765-4
  54. Nelson-Becker, H., & Moeke-Maxwell, T. (2020). Spiritual Diversity, Spiritual Assessment, and Māori End-of-Life Perspectives: Attaining Ka Ea. Religions, 11(10), 536. Retrieved from https://www.mdpi.com/2077-1444/11/10/536
  55. Nissen, Viftrup, D., & Hvidt, N. (2021). The Process of Spiritual Care. Frontiers in Psychology, 12(3945). doi:10.3389/fpsyg.2021.674453
  56. Nissen, R. D., & Andersen, A. H. (2022). Addressing Religion in Secular Healthcare: Existential Communication and the Post-Secular Negotiation. Religions, 13(1), 34. Retrieved from https://www.mdpi.com/2077-1444/13/1/34
  57. Nissen, R. D., Gildberg, F. A., & Hvidt, N. C. (2019). Approaching the religious psychiatric patient in a secular country: Does “subalternalizing” religious patients mean they do not exist? Archive for the Psychology of Religion, 41(2), 123-140. doi:10.1177/0084672419868770
  58. Nynäs, P., Lassander, M., & Utriainen, T. (2021). Post-Secular Society (P. Nynäs, Lassander, M., & Utriainen, T. Ed. 1st ed. ed.): Routledge.
  59. Opsahl, T., Ahrenfeldt, L. J., Möller, S., & Hvidt, N. C. (2019). Religiousness and depressive symptoms in Europeans: findings from the Survey of Health, Ageing, and Retirement in Europe. Public Health, 175, 111-119. doi:10.1016/j.puhe.2019.07.011
  60. Peterman, A. H., Fitchett, G., Brady, M. J., Hernandez, L., & Cella, D. (2002). Measuring spiritual well-being in people with cancer: the functional assessment of chronic illness therapy--Spiritual Well-being Scale (FACIT-Sp). Ann Behav Med, 24(1), 49-58. doi:10.1207/S15324796ABM2401_06
  61. Pinto, S. M. O., Berenguer, S., Martins, J. C. A., & Kolcaba, K. (2016). Cultural adaptation and validation of the Portuguese End of Life Spiritual Comfort Questionnaire in Palliative Care patients. Porto Biomed J, 1(4), 147-152. doi:10.1016/j.pbj.2016.08.003
  62. Puchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., . . . Sulmasy, D. (2009). Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. J Palliat Med, 12(10), 885-904. doi:10.1089/jpm.2009.0142
  63. Puchalski, C., Jafari, N., Buller, H., Haythorn, T., Jacobs, C., & Ferrell, B. (2020). Interprofessional Spiritual Care Education Curriculum: A Milestone toward the Provision of Spiritual Care. J Palliat Med, 23(6), 777-784. doi:10.1089/jpm.2019.0375
  64. Ramezani, M., Ahmadi, F., Mohammadi, E., & Kazemnejad, A. (2014). Spiritual care in nursing: a concept analysis. Int Nurs Rev, 61(2), 211-219. doi:10.1111/inr.12099
  65. Seddigh, R., Amir-Abbas Keshavarz-Akhlaghi, and Somayeh Azarnik. (2016). Questionnaires Measuring Patients’ Spiritual Needs: A Narrative Literature Review. Iran J Psychiatry Behav Sci. 2016 March; 10(1):e4011. doi:10.17795/ijpbs-4011
  66. Souza, M. T., Silva, M. D., & Carvalho, R. (2010). Integrative review: what is it? How to do it? Einstein (Sao Paulo), 8(1), 102-106. doi:10.1590/s1679-45082010rw1134
  67. Stripp, T. K., Büssing, A., Wehberg, S., Andersen, H. S., Kørup, A. K., Pedersen, H. F., . . . Hvidt, N. C. (2022). Measuring Spiritual Needs in a Secular Society: Validation and Clinimetric Properties of the Danish 20-Item Spiritual Needs Questionnaire. Journal of Religion and Health. doi:10.1007/s10943-022-01533-5
  68. Stripp, T. K., Viftrup, D. T., Nissen, R. D., Wehberg, S., Sondergaard, J., & Hvidt, N. C. (2022). Testing the acceptability and comprehensibility of a questionnaire on existential and spiritual constructs in a secular culture through cognitive interviews. Survey Research Methods, Accepted, in publication.
  69. Stripp, T. K., Wehberg, S., Büssing, A., Andersen-Ranberg, K., Jensen, L. H., Henriksen, F. L., . . . Hvidt, N. C. (2022). Protocol for EXICODE: the EXIstential health COhort DEnmark—a register and survey study of adult Danes. BMJ Open, 12(6), e058257. doi:10.1136/bmjopen-2021-058257
  70. Saad, M., & de Medeiros, R. (2021). Spirituality and Healthcare—Common Grounds for the Secular and Religious Worlds and Its Clinical Implications. Religions, 12(1), 22. Retrieved from https://www.mdpi.com/2077-1444/12/1/22
  71. Tan, H., Rumbold, B., Gardner, F., Snowden, A., Glenister, D., Forest, A., . . . Wyles, L. (2020). Understanding the outcomes of spiritual care as experienced by patients. Journal of Health Care Chaplaincy, 1-15. doi:10.1080/08854726.2020.1793095
  72. Thomas, D. R. (2006). A General Inductive Approach for Analyzing Qualitative Evaluation Data. American Journal of Evaluation, 27(2), 237-246. doi:10.1177/1098214005283748
  73. Timmins, F., Murphy, M., Caldeira, S., Ging, E., King, C., Brady, V., . . . Nolan, B. (2016). Developing Agreed and Accepted Understandings of Spirituality and Spiritual Care Concepts among Members of an Innovative Spirituality Interest Group in the Republic of Ireland. Religions, 7(3), 30. Retrieved from https://www.mdpi.com/2077-1444/7/3/30
  74. Vallurupalli, M., Lauderdale, K., Balboni, M. J., Phelps, A. C., Block, S. D., Ng, A. K., . . . Balboni, T. A. (2012). The role of spirituality and religious coping in the quality of life of patients with advanced cancer receiving palliative radiation therapy. J Support Oncol, 10(2), 81-87. doi:10.1016/j.suponc.2011.09.003
  75. VanderWeele, T. J., Li, S., Tsai, A. C., & Kawachi, I. (2016). Association Between Religious Service Attendance and Lower Suicide Rates Among US Women. JAMA Psychiatry, 73(8), 845-851. doi:10.1001/jamapsychiatry.2016.1243
  76. Viftrup, D. T., Laursen, K., & Hvidt, N. C. (2021). Developing an Educational Course in Spiritual Care: An Action Research Study at Two Danish Hospices. Religions, 12(10), 827. Retrieved from https://www.mdpi.com/2077-1444/12/10/827
  77. Vilalta, A., Valls, J., Porta, J., & Vinas, J. (2014). Evaluation of spiritual needs of patients with advanced cancer in a palliative care unit. J Palliat Med, 17(5), 592-600. doi:10.1089/jpm.2013.0569
  78. Vivat, B., Young, T. E., Winstanley, J., Arraras, J. I., Black, K., Boyle, F., . . . Group, E. Q. o. L. (2017). The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer. Eur J Cancer Care (Engl), 26(6). doi:10.1111/ecc.12697
  79. Whittemore, R., & Knafl, K. (2005). The integrative review: updated methodology. J Adv Nurs, 52(5), 546-553. doi:10.1111/j.1365-2648.2005.03621.x
  80. Willis, G. B. (2005). Cognitive Interviewing: A Tool for Improving Questionnaire Design: SAGE Publications.
  81. World Health, O. (2014). Strengthening of Palliative Care as a Component of Integrated Treatment throughout the Life Course. Journal of Pain & Palliative Care Pharmacotherapy, 28(2), 130-134. doi:10.3109/15360288.2014.911801
  82. Zinnbauer, B. J., Pargament, K. I., Cole, B., Rye, M. S., Butter, E. M., Belavich, T. G., . . . Kadar, J. L. (1997). Religion and Spirituality: Unfuzzying the Fuzzy. Journal for the Scientific Study of Religion, 36(4), 549-564. doi:10.2307/1387689