Publiceret 2024-06-25
Nøgleord
- demens,
- overvågning,
- velfærdsteknologi,
- pårørendeperspektiv
Citation/Eksport
Copyright (c) 2024 Astrid Meyer
Dette værk er under følgende licens Creative Commons Navngivelse –Ikke-kommerciel (by-nc).
Resumé
Global Positioning System (GPS)-tracking is increasingly used to prevent and manage wandering in Danish dementia care. In this article, I follow the first-hand experiences of a woman using GPS-tracking to care for her husband with Alzheimer's at home and after he moves into a nursing home. In doing so, I trace how the GPS-tracker plays many different roles as it is used for different purposes. To conceptualise these changes, I draw on the idea of care arrangements (López Gómez, 2015; Thygesen & Moser, 2010), and understand GPS-tracking as being a part of ever-changing constellations of heterogeneous elements allowing for particular possibilities and restraints in care.
I show how GPS-tracking is a dynamic technology, able to change along with care arrangements. Making GPS-tracking change role does, however, also add tensions and new expectations, which means it not only is shaped by care arrangements but also shapes them. Based on this co-shaping, I argue that GPS-tracking is a 'sticky' technology that clings to the care arrangement. The idea of 'stickiness' is furthermore supported by the way GPS-tracking makes itself seem necessary as it articulates risks in particular ways. By drawing on Buch's notion of care as generative labour (2018), I point to how GPS-tracking produces new responsibilities, which require alert carers. In exploring these tensions and changing roles I aim to add nuance to the use of GPS-tracking and how this technology both can cause and indicate broader changes in dementia care.
Referencer
- Agrawal, A. K., Gowda, M., Achary, U., Gowda, G. S., et al. (2021). Approach to Management of Wandering in Dementia: Ethical and Legal Issue. Indian Journal of Psychological Medicine, 43(5_suppl), S53–S59. SAGE Publications India. Retrieved from https://doi.org/10.1177/02537176211030979
- Akrich, M. (1992). The De-scription of Technical Objects. In W. Bijker & J. Law (Eds.), Shaping Technology- Building Society: Studies in Sociotechnical Change (pp. 205–224). Cambridge, MA: MIT Press.
- Akrich, M., & Latour, B. (1992). A Summary of a Convenient Vocabulary for the Semiotics of Human and Nonhuman Assemblies. Bijker, W.E., Law, J.
- Algase, D. L., Moore, D. H., Vandeweerd, C., & Gavin-Dreschnack, D. J. (2007). Mapping the maze of terms and definitions in dementia-related wandering. Aging & Mental Health, 11(6), 686–698. Routledge. Retrieved from https://doi.org/10.1080/13607860701366434
- Bartlett, R., Brannelly, T., & Topo, P. (2019). Using GPS Technologies with People with Dementia: A Synthesising Review and Recommendations for Future Practice. Tidsskrift for omsorgsforskning, 5(3), 84–98. Retrieved from http://www.idunn.no/doi/10.18261/issn.2387-5984-2019-03-08
- Brittain, K., Degnen, C., Gibson, G., Dickinson, C., et al. (2017). When walking becomes wandering: representing the fear of the fourth age. Sociology of Health & Illness, 39(2), 270–284. Retrieved from https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.12505
- Buch, E. D. (2018). Inequalities of Aging Paradoxes of Independence in American Home Care. New York, NY: New York University Press.
- Ceci, C., Moser, I., & Pols, J. (2020). The Shifting Arrangements We Call Home. In B. Pasveer, O. Synnes, & I. Moser (Eds.), Ways of Home Making in Care for Later Life (pp. 293–312). Singapore: Springer Nature Singapore. Retrieved from https://doi.org/10.1007/978-981-15-0406-8_14
- Cipriani, G., Lucetti, C., Nuti, A., & Danti, S. (2014). Wandering and dementia: Wandering. Psychogeriatrics, 14(2), 135–142. Retrieved from https://onlinelibrary.wiley.com/doi/10.1111/psyg.12044
- Dewing, J. (2007). Participatory research: A method for process consent with persons who have dementia. Dementia, 6(1), 11–25. Retrieved from http://journals.sagepub.com/doi/10.1177/1471301207075625
- Driessen, A. (2018). Sociomaterial Will-Work: Aligning Daily Wanting in Dutch Dementia Care. In F. Krause & J. Boldt (Eds.), Care in Healthcare: Reflections on Theory and Practice (pp. 111–133). Cham: Springer International Publishing. Retrieved from https://doi.org/10.1007/978-3-319-61291-1_7
- Felding, S. A., & Schwennesen, N. (2019). En analyse af den konfliktfyldte omsorgstrojka mellem mennesker med demens, pårørende og plejepersonale på et plejehjem i Danmark. Tidsskrift for Forskning i Sygdom og Samfund, 30, 123–149.
- Glavind, I. M. L., & Mogensen, H. O. (2022). Fragile storytelling: Methodological considerations when conducting ethnographic fieldwork among people with Alzheimer’s disease. SSM - Qualitative Research in Health, 2, 100103. Retrieved from https://linkinghub.elsevier.com/retrieve/pii/S2667321522000658
- Grosen, S. L., & Hansen, A. M. (2021). Sensor-floors: Changing Work and Values in Care for Frail Older Persons. Science, Technology, & Human Values, 46(2), 254–274. Retrieved from http://journals.sagepub.com/doi/10.1177/0162243920911959
- Ienca, M., Jotterand, F., Vică, C., & Elger, B. (2016). Social and Assistive Robotics in Dementia Care: Ethical Recommendations for Research and Practice. International Journal of Social Robotics, 8(4), 565–573. Retrieved from http://link.springer.com/10.1007/s12369-016-0366-7
- Kommunernes Landsforening. (2023). Fælles erklæring om velfærdsteknologi. https://videncenter.kl.dk/media/27695/kl_faelles-erklaering-om-velfaerdsteknologi.pdf, Accessed 12.03.2023.
- López Gómez, D. (2015). Little arrangements that matter. Rethinking autonomy-enabling innovations for later life. Technological Forecasting and Social Change, 93, 91–101. Retrieved from https://linkinghub.elsevier.com/retrieve/pii/S0040162514000791
- Ministry of Social Affairs, Housing and Senior Citizens. (2022, January 6). Bekendtgørelse om tryghedsskabende velfærdsteknologiske løsninger i relation til afsnit VII i lov om social service. Retrieved from https://www.retsinformation.dk/eli/lta/2022/13
- Mol, A. (2008). The Logic of Care. Oxon: Routledge.
- Mol, A., Moser, I., & Pols, J. (Eds). (2010). Care in Practice: On Tinkering in Clinics, Homes and Farms. transcript Verlag. Retrieved from https://www.degruyter.com/document/doi/10.14361/transcript.9783839414477/html
- Neubauer, N. A., Azad-Khaneghah, P., Miguel-Cruz, A., & Liu, L. (2018). What do we know about strategies to manage dementia-related wandering? A scoping review. Alzheimer’s & Dementia : Diagnosis, Assessment & Disease Monitoring, 10, 615–628. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6234917/
- Niemeijer, A. R., Depla, M. F., Frederiks, B. J., & Hertogh, C. M. (2015). The experiences of people with dementia and intellectual disabilities with surveillance technologies in residential care. Nursing Ethics, 22(3), 307–320. Retrieved from http://journals.sagepub.com/doi/10.1177/0969733014533237
- Niemeijer, A. R., Depla, M., Frederiks, B., Francke, A. L., et al. (2014). The Use of Surveillance Technology in Residential Facilities for People with Dementia or Intellectual Disabilities: A Study Among Nurses and Support Staff. The American Journal of Nursing, 114(12), 28–38. Lippincott Williams & Wilkins. Retrieved from http://www.jstor.org.ez.statsbiblioteket.dk/stable/24466736
- Niemeijer, A. R., Frederiks, B. J. M., Riphagen, I. I., Legemaate, J., et al. (2010). Ethical and practical concerns of surveillance technologies in residential care for people with dementia or intellectual disabilities: an overview of the literature. International Psychogeriatrics, 22(7), 1129–1142. Retrieved from https://www.cambridge.org/core/product/identifier/S1041610210000037/type/journal_article
- Oudshoorn, N., & Pinch, Trevor. (2005). How users matter : the co-construction of users and technology. Inside technology. Cambridge, Mass: MIT Press.
- Peine, A., & Neven, L. (2021). The co-constitution of ageing and technology – a model and agenda. Ageing and Society, 41(12), 2845–2866. Retrieved from https://www.cambridge.org/core/product/identifier/S0144686X20000641/type/journal_article
- Pols, J. (2005). Enacting Appreciations: Beyond the Patient Perspective. Health Care Analysis, 13(3), 203–221. Retrieved from http://link.springer.com/10.1007/s10728-005-6448-6
- Pols, J., & Willems, D. (2011). Innovation and evaluation: taming and unleashing telecare technology. Sociology of health & illness, 33(3), 484–498.
- Stella Care. (2023, February 5). The best GPS devices for people with Dementia. https://stellacare.dk/en/, Accessed 23.02.2023.
- Thygesen, H., & Moser, I. (2010). Technology and Good Dementia Care: An Argument for an Ethics-in-Practice Approach. New Technologies and Emerging Spaces of Care. Surrey: Ashgate.
- Vermeer, Y., Higgs, P., & Charlesworth, G. (2019). What do we require from surveillance technology? A review of the needs of people with dementia and informal caregivers. Journal of Rehabilitation and Assistive Technologies Engineering, 6, 205566831986951. Retrieved from http://journals.sagepub.com/doi/10.1177/2055668319869517
- Wigg, J. M. (2010). Liberating the wanderers: using technology to unlock doors for those living with dementia. Sociology of Health & Illness, 32(2), 288–303. Retrieved from https://onlinelibrary.wiley.com/doi/10.1111/j.1467-9566.2009.01221.x
- Winance, M. (2010). Care and disability Practices of experimenting, tinkering with, and arranging people and technical aids. In A. Mol, I. Moser, & J. Pols (Eds.), On Tinkering in Clinics, Homes and Farms (pp. 93–118). transcript Verlag. Retrieved from https://doi.org/10.1515/transcript.9783839414477.93
- Woolford, M., Weller, C., & Ibrahim, J. (2017). Unexplained Absences and Risk of Death and Injury Among Nursing Home Residents: A Systematic Review. Journal of the American Medical Directors Association, 18.