Waiting for Discovery and Support?

Neurodivergent Subjectivities in the Swedish Educational Landscape

Authors

  • Sofia Österborg Wiklund Umeå University
  • Hanna Bertilsdotter Rosqvist Social Sciences, Södertörn University, Stockholm, Sweden
  • Anette Bagger School of Humanities, Education and Social Sciences, Örebro University, Örebro, Sweden
  • Julie Allan School of Education, University of Birmingham

DOI:

https://doi.org/10.7146/ejie.v1i1.135517

Keywords:

Neurodiversity, Teacher Education, Critical Policy Analysis, Norm Critical Education, Neurodivergence, Sex and Cohabitation Education

Abstract

PURPOSE: In this paper, we explore and contrast the Swedish state and NGO arguments for initiating two changes in national educational degree objectives in Swedish teacher education: one regarding sex and cohabitation education, and the other regarding support for pupils with ʻneuropsychiatric difficultiesʼ such as autism and ADHD (here referred to as neurodivergent pupils).

APPROACH: Using critical policy analysis, we compare the arguments from the government as well as responding bodies for introducing the two objectives, with a focus on neurodivergent pupils.

RESULTS: Our findings suggest that discourses concerning sex and cohabitation education for all pupils and support for pupils with ʻneuropsychiatric difficultiesʼ respectively derive from different educational ideologies and reproduce different ideas about pupils as active citizens versus passive objects of interventions. The objective of sex and cohabitation education is framed within a norm critical discourse putting forward reflexivity and identity, and where pupils are active subjects to be involved in the process. In contrast, neurodivergence is framed within a deficit approach as neurobiological, individual impairment, and a special educational problem that should be managed by professionals. It is seen as a risk for school failure, where neurodivergent pupils are passive objects of professional discovery and support.

CONCLUSION: In a Swedish educational policy landscape, stressing the importance of educating pupils in line with ideas of children as right-bearers, our exploration illustrates how ʻall pupilsʼ versus neurodivergent pupils, within teacher education, are positioned as belonging to different categories of citizens: as active subjects of rights, versus passive subjects of care. This perception of neurodivergence, we argue, hampers progress towards embracing neurodivergence as a social category, and neurodivergent pupils as political subjects.

Author Biographies

Hanna Bertilsdotter Rosqvist , Social Sciences, Södertörn University, Stockholm, Sweden

Hanna Bertilsdotter Rosqvist is an Associate Professor in Sociology and currently a Senior Lecturer in Social work at Södertörn University, Sweden. Her recent research is around autism, identity politics, and sexual, gendered, and age normativity. She is among the editors of Neurodiversity Studies. A New Critical Paradigm (Hanna Bertilsdotter Rosqvist, Nick Chown & Anna Stenning (eds.). 2020. London: Routledge, 2020).

Anette Bagger, School of Humanities, Education and Social Sciences, Örebro University, Örebro, Sweden

Anette Bagger is Docent and an Associate senior lecturer in special education at Örebro University and the School of Humanities, Education and Social Sciences. Baggers interest in how equity is conditioned at individual, group and organizational levels and researchers assessment, mathematics education and students in special educational needs. Bagger is active in the following research groups: Örebro University: SpecEDL- Special Education, Development and Learning. Education and Democracy. Stockholms University: Socio Political Aspects of Mathematics Education (SOCAME).

Julie Allan, School of Education, University of Birmingham

Julie Allan is Professor of Equity and Inclusion at the University of Birmingham, UK where she was formerly Head of the School of Education. Julie’s research focuses on inclusion, disability studies and children’s rights and encompasses both empirical and theoretical work. She has been an expert adviser on policy, practice and research to governments, NGOs and Council of Europe. Julie Allan and Valerie Harwood co-edited, together with Clara Jørgensen, The Routledge World Yearbook in Education: Schooling, governance and inequalities (2020, Routledge) and Julie and Valerie’s latest book, On the self: Discourses of mental health and education, has just been published by Palgrave Macmillan.

References

Alm, E., & Laskar, P. (2017). Den normkritiska vändningen och förstahetens genealogier [The norm-critical turn and the genealogies of primacy]. In A. Burman & L. Lennerhed (Eds.), Samtider: Perspektiv på 2000-talets idéhistoria [Contemporaries: Perspectives on the history of ideas in the 21st century] (pp. 137–160). Daidalos.

Arduin, S. (2015). A review of the values that underpin the structure of an education system and its approach to disability and inclusion. Oxford Review of Education, 41(1), 105–121. https://doi.org/10.1080/03054985.2015.1006614

Bacchi, C. (2009). What’s the problem represented to be? Pearson Education.

Bayati, Z. (2014). ‘den Andreʼ i lärarutbildningen: En studie om den rasifierade svenska studentens villkor i globaliseringens tid [‘The Otherʼ in teacher education: A study of the racialized Swedish student’s conditions in the era of globalization; doctoral dissertation]. Göteborgs universitet.

Berhanu, G. (2011). Inclusive education in Sweden: Responses, challenges and prospects. International Journal of Special Education, 26(2), 128–148.

Bertilsdotter Rosqvist, H., Brownlow, C., & O’Dell, L. (2015). ʻAn association for allʼ: Notions of the meaning of autistic self-advocacy politics within a parent-dominated autistic movement. Journal of Community and Applied Social Psychology, 25(3), 219–231.

Bertilsdotter Rosqvist, H., Stenning, S., & Chown, N. (2020). Neurodiversity studies: Proposing a new field of inquiry. In H. Bertilsdotter Rosqvist, N. Chown, & A. Stenning (Eds.), Neurodiversity studies. A new critical paradigm (pp. 226–228). Routledge.

Björkman, L., Bromseth, J., & Hill, H. (2021). Normkritisk pedagogik: Framväxten och utvecklingen av ett nytt begrepp i den svenska utbildningskontexten [Norm critical pedagogy: The emergence and development of a new concept in the Swedish educational context]. Nordisk tidsskrift for pedagogikk & kritikk, 7, 179–195. https://doi.org/10.23865/ntpk.v7.2314

Blume, H. (1997). ‘Autism and the internetʼ or ‘It’s the wiring, stupidʼ. http://web.mit.edu/comm-forum/legacy/papers/blume.html

Bredström, A. (2008). Safe sex, unsafe identities: Intersections of ‘race’, gender and sexuality in Swedish HIV/AIDS policy [Unpublished doctoral dissertation]. Department of Social and Welfare Studies, Linköping University.

Bredström, A., & Gruber, S. (2015). Language, culture and maternity care: ‘Troublingʼ interpretation in an institutional context. Nordic Journal of Migration Research, 5(2), 58–66. http://doi.org/10.1515/njmr-2015-0010

Bromseth, J. (2019). Normkritisk pedagogik: Rötter och fötter [Norm critical pedagogy: Roots and feet]. In L. Björkman & J. Bromseth (Eds.), Normkritisk pedagogik: Perspektiv, utmaningar och möjligheter [Norm critical pedagogy: Perspectives, challenges and opportunities] (pp. 41–72). Studentlitteratur.

Bröer, C., & Heerings, M. (2013). Neurobiology in public and private discourse: The case of adults with ADHD. Sociology of Health & Illness, 35(1), 49–65. https://doi.org/10.1111/j.1467-9566.2012.01477.x

Burman, E. (1994). Deconstructing developmental psychology (1st ed.). Routledge.

Bruno, L. (2015). Contact and evaluations of violence: An intersectional analysis of Swedish court orders. International Journal of Law, Policy and the Family, 29(2), 167–182. https://doi.org/10.1093/lawfam/ebv002

Bylund, C. (2022). Anakrona livsvillkor: En studie av funktionalitet, möjligheter och begär i den föränderliga svenska välfärdsstaten [Anachronistic living conditions: Dis/ability, possibility and desire in the changeable Swedish welfare state; Unpublished doctoral dissertation]. Department of Culture and Media Studies, Umeå University.

Carlson, S., Frankenberger, W., Hall, K. M., Totten, S. J., & House, K. (2006). International perspectives on attention-deficit/hyperactivity disorder: A comparison of teachers in the United States and Sweden. Journal of the American Academy of Special Education Professionals, 21(1), 107–121.

Carlson, M., & Kanci, T. (2017). The nationalized and gendered citizen in a global world: Examples from textbooks, policy and steering documents in Turkey and Sweden. Gender and Education, 29(3), 313–331. https://doi.org/10.1080/09540253.2016.1143917

Centerwall, E. (2005). Med moralen som styrmedel: Historiska perspektiv på sexualupplysning [With morality as a means of control: Historical perspectives on sexual education]. In A. Nilsson (Ed.), Hela livet: 50 år med sex- och samlevnadsundervisning [The whole life: 50 years of sex and cohabitation education] (pp. 25–33). Liber.

Danforth, S., & Jones, P. (2015). From special education to integration to genuine inclusion. In C. Forlin (Ed.), Foundations of inclusive education research: Vol. 6. International perspectives on inclusive education (pp. 1–21). Emerald Group Publishing Limited. https://doi.org/10.1108/S1479-363620150000006014

de Cassia Fernandes Signor, R., Berberian, A. P., & Santana, A. P. (2017). The medicalization of education: Implications for the constitution of the subject/learner. Educaçäo e Pesquisa, 43(3), 743–763. https://doi.org/10.1590/S1517-9702201610146773

Elhoweris, H., Mohamed, A., Almuhairy, O., Takriti, R., Alhosani, N., & Sartawi, A. (2020). UAE elementary teachersʼ use of ADHD referral and management strategies. International Journal of Learning, Teaching and Educational Research, 19(6), 337–352. https://doi.org/10.26803/ijlter.19.6.20

Eriksson, M. (2009). Girls and boys as victims: Social workersʼ approaches to children exposed to violence. Child Abuse Review, 18(6), 428–445. https://doi.org/10.1002/car.1091

Fairclough, N. (2010). Critical discourse analysis: The critical study of language (2nd ed.). Routledge. https://doi.org/10.4324/9781315834368

Ferguson, D. L. (2008). International trends in inclusive education: The continuing challenge to teach each one and everyone. European Journal of Special Needs Education, 23(2), 109–120. https://doi.org/10.1080/08856250801946236

Forbes, J., Öhrn, E., & Weiner, G. (2011). Slippage and/or symbolism: Gender, policy and educational governance in Scotland and Sweden. Gender and Education, 23(6), 761–776. https://doi.org/10.1080/09540253.2010.527830

Förordning om ändring i högskoleförordningen (1993:100) [Ordinance on amendments to the Higher Education Ordinance (1993:100)] (2020). Swedish Code of statutes 2020:766. https://svenskforfattningssamling.se/sites/default/files/sfs/2020-09/SFS2020-766.pdf

Habel, Y. (2012). Challenging Swedish exceptionalism? Teaching while Black. In K. Freeman & E. Johnson (Eds.), Education in the Black diaspora: Perspectives, challenges and prospects (1st ed., pp. 99–122). Routledge. https://doi.org/10.4324/9780203152973

Hill, H. (2021). ‘Normkritisk vaccinationʼ: Normkritik och normkritisk pedagogik i Skolverkets rapporter och råd 2009-2014 [‘Norm-critical vaccinationʼ: Norm criticism and norm-critical pedagogy in the Swedish National Agency for Education's reports and advice 2009–2014]. Pedagogisk forskning i Sverige, 26(2–3), 38–60. https://doi.org/10.15626/pfs26.0203.05

Hinshaw, S. P., & Scheffler, R. M. (2014). The ADHD explosion: Myths, medication, money, and todayʼs push for performance. Oxford University Press.

Hübinette, T., & Mählck, P. (2015). The racial grammar of Swedish higher education and research policy: The limits and conditions of researching race in a colour-blind context. In R. Andreassen & K. Vitus (Eds.), Affectivity and race: Studies from a Nordic context (pp. 59–73). Routledge. https://doi.org/10.4324/9781315565880

Jans, M. (2004). Children as citizens: Towards a contemporary notion of child participation. Childhood, 11(1), 27–44. https://doi.org/10.1177/0907568204040182

Kalonaityté, V. (2014). Normkritisk pedagogik: För den högre utbildningen [Norm-critical education: For higher education] (1st ed.) Studentlitteratur.

Kreitz-Sandberg, S. (2013). Gender inclusion and horizontal gender segregation: Stakeholdersʼ strategies and dilemmas in Swedish teachersʼ education. Gender and Education, 25(4), 444–465. http://dx.doi.org/10.1080/09540253.2013.772566

McMellon, C., & Tisdall, E. K. M. (2020). Children and young peopleʼs participation rights: Looking backwards and moving forwards. The International Journal of Childrenʼs Rights, 28(1), 157–182. http://dx.doi.org/10.1163/15718182-02801002

Mikander, P., Zilliacus H., & Holm, G. (2018). Intercultural education in transition: Nordic perspectives. Education Inquiry, 9(1), 40–56, https://doi.org/10.1080/20004508.2018.1433432

Ministry of Education and Research. (2020a). Ökad kompetens om neuropsykiatriska svårigheter och sex och samlevnad i lärarutbildningarna (promemoria) [Increased competence on neuropsychiatric difficulties and sex and cohabitation in teacher training]. https://www.regeringen.se/contentassets/de59964617c042f9a6f7c83508bdb1c2/okad-kompetens-om-neuropsykiatriska-svarigheter-och-sex-och-samlevnad-i-lararutbildningarna/

Ministry of Education and Research. (2020b). Remiss av promemorian Ökad kompetens om neuropsykiatriska svårigheter och sex och samlevnad i lärarutbildningarna [Referral of the memorandum Increased competence on neuropsychiatric difficulties and sex and cohabitation in teacher training]. https://www.regeringen.se/remisser/2020/01/remiss-av-promemorian-okad-kompetens-om-neuropsykiatriska-svarigheter-och-sex-och-samlevnad-i-lararutbildningarna/ retrieved 20230820

Miodus, S., Allwood, M. A., & Amoh, N. (2021). Childhood ADHD symptoms in relation to trauma exposure and PTSD symptoms among college students: Attending to and accommodating trauma. Journal of Emotional and Behavioral Disorders, 29(3), 187–196. https://doi.org/10.1177/1063426620982624

Molloy, H., & Vasil, L. (2002). The social construction of Asperger Syndrome: The pathologising of difference? Disability & Society, 17(6), 659–669. https://doi.org/10.1080/0968759022000010434

Oikkonen, V. (2013). Competing truths: Epistemic authority in popular science books on human sexuality. European Journal of English Studies, 17(3), 283–294. https://doi.org/10.1080/13825577.2013.867181

Österborg Wiklund, S. & Bertilsdotter Rosqvist, H. (2023). ‘Nothing about us without usʼ: ett neurodiversitetsperspektiv inom normkritisk pedagogik [‘Nothing about us without usʼ: a neurodiversity perspective in norm-critical education]. In Normkritiska perspektiv i pedagogisk verksamhet [Norm-critical perspectives in educational activities] (pp. 51–70). Studentlitteratur.

Pellicano, E., & den Houting, J. (2021). Annual research review: Shifting from ‘normal science’ to neurodiversity in autism science. The Journal of Child Psychology and Psychiatry, 63(4), 381–396. https://doi.org/10.1111/jcpp.13534

Singer, J. (1999). Why can’t you be normal for once in your life? From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability discourse (pp. 59–67). Open University Press.

Slee, R. (2014). Another Salamanca? In F. Kiuppis & R. S. Hausstätter (Eds.), Inclusive education twenty years after Salamanca (pp. 299–310). Peter Lang.

Srivastava, M., de Boer, A., & Pijl, S. J. (2015). Inclusive education in developing countries: A closer look at its implementation in the last 10 years. Educational Review, 67(2), 179–195. https://doi.org/10.1080/00131911.2013.847061

Starke, M., Bertilsdotter Rosqvist, H., & Kuosmanen, J. (2016). Eternal children? Professionals’ constructions of women with an intellectual disability who are victims of sexual crime. Sexuality & Disability, 34, 315–328.

Swedish Code of Statutes 1993:100. (1993). Högskoleförordning [The higher education ordinance]. https://www.riksdagen.se/sv/dokument-och-lagar/dokument/svensk-forfattningssamling/hogskoleforordning-1993100_sfs-1993-100/

Swedish Code of Statutes 2008:567. (2008). Diskrimineringslag [Discrimination Act]. https://www.riksdagen.se/sv/dokument-och-lagar/dokument/svensk-forfattningssamling/diskrimineringslag-2008567_sfs-2008-567/

Swedish Code of Statutes 2018:1197. (2018). Lag om Förenta nationernas konvention om barnets rättigheter [The United Nations Convention on the rights of the child act]. https://svenskforfattningssamling.se/sites/default/files/sfs/2018-06/SFS2018-1197.pdf

Swedish National Agency for Education. (2009). Diskriminerad, trakasserad, kränkt?: Barns, elevers och studerandes uppfattningar om diskriminering och trakasserier [Discriminated, harassed, violated?: Childrenʼs, pupilsʼ and studentsʼ perceptions of discrimination and harassment]. Skolverket. https://www.skolverket.se/download/18.6bfaca41169863e6a6584b0/1553961787642/pdf2164.pdf

Swedish National Agency for Education (2023, June 27). Sexualitet, samtycke och relationer [Sexuality, consent and relationships]. https://www.skolverket.se/skolutveckling/inspiration-och-stod-i-arbetet/stod-i-arbetet/sexualitet-samtycke-och-relationer

The Autism and Asperger Association. (2020). Yttrande över promemoria Ökad kompetens om neuropsykiatriska svårigheter och sex och samlevnad i lärarutbildningarna, U2020/00176/UH [Opinion on memorandum Increased competence on neuropsychiatric difficulties and sex and cohabitation in teacher training, U2020/00176/UH]. https://www.regeringen.se/contentassets/cbc9fbe123e445cfbd6317b938363670/autism--och-aspergerforbundet.pdf

The National Association for People with Neuropsychiatric Disabilities. (2020). Attentions remissvar på förslaget om ökad kompetens om neuropsykiatriska svårigheter och sex och samlevnad i lärarutbildningarna U2020/00176/UH [Attentionʼs consultation response to the proposal for increased competence on neuropsychiatric difficulties and sex and cohabitation in teacher training U2020/00176/UH]. https://www.regeringen.se/contentassets/cbc9fbe123e445cfbd6317b938363670/riksforbundet-attention.pdf

UN. (1989). Convention on the rights of the child. https://www.ohchr.org/en/professionalinterest/pages/crc.aspx

UNESCO. (1994). The Salamanca statement and framework for action on special needs education. World conference on special needs education: Access and quality. https://unesdoc.unesco.org/ark:/48223/pf0000098427

UNESCO. (2018). International technical guidance on sexuality education: An evidence-informed approach (2nd rev. ed.). United Nations Educational, Scientific and Cultural Organization, UNAIDS Secretaria, The United Nations Population Fund, The United Nations Children’s Fund, UN Women & The World Health Organization. https://doi.org/10.54675/UQRM6395

Walker, N. (2012). Neurodiversity: Some basic terms & definitions. https://neuroqueer.com/neurodiversity-terms-and-definitions/

Weiner, G., & Berge, B.-M. (2001). Kön och Kunskap [Gender and knowledge]. Studentlitteratur.

Wiener, J., & Mak, M. (2008). Peer victimization in children with Attention-Deficit/Hyperactivity Disorder. Psychology in the Schools, 46(2), 116–131. https://doi.org/10.1002/pits.20358

Yergeau, M. (2018). Authoring autism: On rhetoric and neurological queerness. Duke University Press. https://doi.org/10.1215/9780822372189

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2023-10-13

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