Creating opportunities for digital engagement and participation

  • Maja Nordtug University of Southern Denmark
Keywords: digital media, social media, participation, engagement, health, HPV vaccination

Abstract

Worldwide, digital media are used by laypersons for health-related purposes. Laypersons’ engagement and participation on the subject of health is the focus of this article, in which I explore how digital media create opportunities for laypersons to engage with information and participate on a health topic which has been subjected to controversy, namely HPV vaccination. The analysis is based on an inductive multidisciplinary literature review of research on digital media and HPV vaccination. In the analysis, I apply Corner’s (2011) understanding of engagement and Kelty and colleagues’ (2015) seven dimensions of participation. I find two kinds of engagement, namely using digital media as information sources and interpersonal communication, that both only satisfi es few dimensions of participation. I argue that broader participation might be unachievable on health subjects such as vaccination and other subjects that require a high degree of expertise to understand. Due to this, laypersons cannot necessarily engage or participate further.

References

Bahk, C.Y., Cumming, M., Paushter, L., Madoff , L.C., Th omson, A., & Brownstein, J. S. (2016). Publicly available online tool facilitates real-time monitoring of vaccine conversations and sentiments. Health Affairs, 35(2), 341-347. Retrieved July 1, 2020, from https://www.doi.org/10.1377/hlthaff .2015.1092.

Basch, C.H., Hillyer, G.C., Berdnik, A., & Basch, C.E. (2016). YouTube videos related to human papillomavirus: The need for professional communication. International Journal of Adolescent Medicine and Health, 30(1), 20150122. Retrieved July 1, 2020, from https://www.doi.org/10.1515/ijamh-2015-0122.

Bragazzi, N.L., Barberis, I., Rosselli, R., Gianfredi, V., Nucci, D., Moretti, M., . . . Martini, M. (2017). How often people google for vaccination: Qualitative and quantitative insights from a systematic search of the web-based activities using Google Trends. Human Vaccines and Immunotherapeutics, 13(2), 464-469. Retrieved July 1, 2020, from https://www.doi.org/10.1080/21645515.2017.1264742.

Britt, R.K., Hatten, K.N., & Chappuis, S.O. (2014). Perceived behavioral control, intention to get vaccinated, and usage of online information about the human papillomavirus vaccine. Health Psychology and Behavioral Medicine, 2(1), 52-65. Retrieved July 1, 2020, from https://www.doi.org/10.1080/21642850.2013.869175.

Brügger, N. (2013). Facebooks historie. Udviklingen af en tom struktur. In J.L. Jensen, & J. Tække (Eds.), Facebook. Fra socialt netværk til metamedie (1st ed., pp. 17-44). Frederiksberg: Samfundslitteratur.

Brügger, N. (2016). Introduction: Th e web’s fi rst 25 years. New Media & Society, 18(7), 1059-1065. Retrieved July 1, 2020, from https://www.doi.org/10.1177/1461444816643787.

Bröckling, U., Krasmann, S., & Lemke, T. (Eds.). (2011). Governmentality. New York: Routledge.

Burke, S.C., Vail-Smith, K., White, D.M., Baker, E., & Mitchell, T. (2010). Getting vaccinated against HPV: Attitudes, intentions and perceived barriers of female undergraduates. College Student Journal, 44(1), 55-63.

Carpentier, N. (2011). Th e Concept of Participation: If They Have Access and Interact, do They Really Participate? CM Komunikacija i mediji, 6(21), 13-36.

Carpentier, N. (2015). Differentiating between access, interaction and participation. Conjunctions. Transdisciplinary Journal of Cultural Participation, 2(2), 7-28. Retrieved July 1, 2020, from https://doi.org/10.7146/tjcp.v2i2.23117.

Clark, S.J., Cowan, A.E., Filipp, S.L., Fisher, A.M., & Stokley, S. (2016). Understanding non-completion of the human papillomavirus vaccine series: Parent-reported reasons for why adolescents might not receive additional doses, United States, 2012. Public Health Reports, 131(3), 390-395. Retrieved July 1, 2020, from https://doi.org/10.1177/003335491613100304.

Corner, J. (2011). Theorising Media: Power, Form and Subjectivity. Manchester: Manchester University Press.

Drotner, K. (2008). Informal learning and digital media: Perceptions, practices and perspectives. In K. Drotner, H.S. Jensen, & K.C. Schrøder (Eds.), Informal Learning and Digital Media (pp. 10-28). Newscastle: Cambridge Scholars Publishing.

Eberth, J.M., Kline, K.N., Moskowitz, D.A., Montealegre, J.R., & Scheurer, M.E. (2014). The role of media and the Internet on vaccine adverse event reporting: A case study of human papillomavirus vaccination. Journal of Adolescent Health, 54(3), 289-295. Retrieved July 1, 2020, from https://www.doi.org/10.1016/j.jadohealth.2013.09.005.

Foucault, M., & Senellart, M. (2007). Security, Territory, Population: Lectures at The College de France, 1977-78. Basingstoke: Palgrave Macmillan.

Hughes, J., Cates, J.R., Liddon, N., Smith, J.S., Gottlieb, S.L., & Brewer, N.T. (2009). Disparities in how parents are learning about the human papillomavirus vaccine. Cancer Epidemiology, Biomarkers & Prevention, 18(2), 363-372. Retrieved July 1, 2020, from https://www.doi.org/10.1158/1055-9965.epi-08-0418.

Iversen, S.M. (2017). Med NVivo som analyseparter. In K. I. Drotner, S. Mosberg (Ed.), Digitale metoder. At skabe, analysere og dele data (pp. 147-163). Frederiksberg: Samfundslitteratur.

Kalichman, S.C., & Kegler, C. (2015). Vaccine-related internet search activity predicts H1N1 and HPV vaccine coverage: Implications for vaccine acceptance. Journal of Health Communication, 20(3), 259-265. Retrieved July 1, 2020, from https://www.doi.org/10.1080/10810730.2013.852274.

Kaptein, R., Boertjes, E., & Langley, D. (2014). Analyzing discussions on Twitter: Case study on HPV vaccinations. In Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics) (Vol. 8416) (pp. 474-480).Retrieved August 24, 2020, from https://link.springer.com/chapter/10.1007/978-3-319-06028-6_44.

Keim-Malpass, J., Mitchell, E.M., Sun, E., & Kennedy, C. (2017). Using Twitter to understand public perceptions regarding the # HPV vaccine: Opportunities for public health nurses to engage in social marketing. Public Health Nursing, 34(4), 316-323. Retrieved July 1, 2020, from https://www.doi.org/10.1111/phn.12318.

Kelty, C., Panofsky, A., Currie, M., Crooks, R., Erickson, S., Garcia, P., . . . Wood, S. (2015). Seven dimensions of contemporary participation disentangled. Journal of the Association for Information Science and Technology, 66(3), 474-488. Retrieved July 1, 2020, from https://www.doi.org/10.1002/asi.23202.

Kontos, E., Blake, K.D., Chou, W.-Y.S., & Prestin, A. (2014). Predictors of eHealth usage: Insights on the digital divide from the health information national trends survey 2012. Journal of Medical Internet Research, 16(7), e172. Retrieved July 1, 2020, from https://www.doi.org/10.2196/jmir.3117.

Kummervold, P.E., Chronaki, C.E., Lausen, B., Prokosch, H.-U., Rasmussen, J., Santana, S., . . . Wangberg, S.C. (2008). eHealth Trends in Europe 2005-2007: A Population-Based Survey. Journal of Medical Internet Research, 10(4), e42. Retrieved July 1, 2020, from https://www.doi.org/10.2196/jmir.1023.

Li, W. (2011). Issues surrounding HPV vaccine delivery in a multi-ethnic country in Asia: The physician’s perspective. Journal of Community Health, 36(1), 14-22. Retrieved July 1, 2020, from https://www.doi.org/10.1007/s10900-010-9275-0.

Livingston, K., Sutherland, K.M., & Sardi, L.M. (2014). Reject, delay, or consent? Parents’ internet discussions of the HPV vaccine for children and implications for HPV vaccine uptake. Research in the Sociology of Health Care, 32, 117-139. Retrieved July 1, 2020, from https://doi.org/10.1108/S0275-495920140000032018.

Lupton, D. (2013). Digitized health promotion: Personal responsibility for health in the web 2.0 era. (Sydney Health & Society Group Working Paper No. 5). Sydney Health & Society Group.

Marchand, E., Glenn, B., & Bastani, R. (2013). HPV vaccination and sexual behavior in a community college sample. Journal of Community Health, 38(6), 1010-1014. Retrieved July 1, 2020, from https://www.doi.org/10.1007/s10900-013-9710-0.

Markowitz, L.E., Tsu, V., Deeks, S. L., Cubie, H., Wang, S.A., Vicari, A.S., & Brotherton, J.M.L. (2012). Human papillomavirus vaccine introduction – the first five years. Vaccine, 30, F139-F148. Retrieved July 1, 2020, from https://doi.org/10.1016/j.vaccine.2012.05.039.

McRee, A.L., Reiter, P.L., & Brewer, N.T. (2012). Parents’ Internet use for information about HPV vaccine. Vaccine, 30(25), 3757-3762. Retrieved July 1, 2020, from https://www.doi.org/10.1016/j.vaccine.2011.11.113.

Miles, M.B., Huberman, A.M., & Saldaña, J. (2014). Qualitative Data Analysis (3rd ed.). London: Sage.

Nettleton, S. (2013). Th e Sociology of Health and Illness (3rd ed.). Cambridge: Polity Press.

Newman, P.A., Logie, C.H., Doukas, N., & Asakura, K. (2013). HPV vaccine acceptability among men: A systematic review and meta-analysis. Sexually Transmitted Infections, 89(7), 568-574. Retrieved July 1, 2020, from https://www.doi.org/10.1136/sextrans-2012-050980.

Okuhara, T., Ishikawa, H., Okada, M., Kato, M., & Kiuchi, T. (2017). Contents of Japanese pro- and anti-HPV vaccination websites: A text mining analysis. Patient Education and Counseling, 101(3), 406-413. Retrieved July 1, 2020, from https://www.doi.org/10.1016/j.pec.2017.09.014.

Seth, P., Wingood, G.M., Robinson, L.S., & DiClemente, R.J. (2009). Exposure to high-risk genital human papillomavirus and its association with risky sexual practices and laboratory-confirmed chlamydia among African-American women. Women’s Health Issues, 19(5), 344-351. Retrieved July 1, 2020, from https://doi.org/10.1016/j.whi.2009.06.001.

Stage, C., Eriksson, B., & Fabian, L. (2015). Introduction participation across institutional and disciplinary boundaries. Conjunctions. Transdisciplinary Journal of Cultural Participation, 2(2), 1-6. Retrieved July 1, 2020, from https://www.doi.org/10.7146/tjcp.v2i2.22913.

Stephens, D.P., & Thomas, T.L. (2014). Social networks influence hispanic college women’s HPV vaccine uptake decision-making processes. Women’s Reproductive Health, 1(2), 120-137. Retrieved July 1, 2020, from https://www.doi.org/10.1080/23293691.2014.966034.

Ward, J.K., Crépin, L., Bauquier, C., Vergelys, C., Bocquier, A., Verger, P., & Peretti-Watel, P. (2017). ‘I don’t know if I’m making the right decision’: French mothers and HPV vaccination in a context of controversy. Health, Risk & Society, 19(1/2), 38-57. Retrieved July 1, 2020, from https://www.doi.org/10.1080/13698575.2017.1299856.

Warner, E., Fowler, B., Martel, L., & Kepka, D. (2017). Improving HPV vaccination through a diverse multistate coalition. Journal of Community Health, 42(5), 911-920. Retrieved July 1, 2020, from https://www.doi.org/10.1007/s10900-017-0334-7.

Published
2020-10-01
How to Cite
Nordtug, M. (2020). Creating opportunities for digital engagement and participation. MedieKultur: Journal of Media and Communication Research, 36(68), 025-041. https://doi.org/10.7146/mediekultur.v36i68.114919
Section
Articles: Open section