The Right to Read Without Being Read
Research Ethics in the Study of Digital Reading Behaviour
DOI:
https://doi.org/10.7146/psj.v4i.150182Keywords:
research ethics, privacy, reading studies, behavioural surplusAbstract
The impact of digitalization on privacy is obvious in many parts of society, including the collection of behavioural data of readers who access literature through digital means (e-books, audiobooks). This data can provide a lot of personal information about the reader (e.g. reading speed, time spent reading, opinions and interests linked to one’s book selection) and in combination with other collected data creates a very detailed picture of a person's lifestyle and movement patterns.
In this position paper, I discuss ethical implications related to the use of large commercial data sets consisting of sensitive personal data in humanities and social sciences research. The ethical implications are explored through the lens of two case studies on digital reading behaviour. By raising ethical questions related to the study of reading, user consent, and legal certainty in the fast-developing information society, I present issues that there is an urgent need for the academic community to discuss to make sure good research practices are in place even when using new types of data and digital methods.
I highlight current privacy and power asymmetry issues between the stakeholders in the research process, especially the users-turned-research subjects, and argue that the research community must assume a larger ethical responsibility when applying novel data-driven methods.
References
Allington, Daniel, Sarah Brouillette, and David Golumbia. “Neoliberal Tools (and Archives): A Political History of Digital Humanities”. Los Angeles Review of Books, 1 May, 2016. https://lareviewofbooks.org/article/neoliberal-tools-archives-political-history-digital-humanities/.
Barnett, Tully. “Distributed Reading: Literary Reading in Diverse Environments”. Digital Humanities Quarterly 12, no. 2 (2018). http://www.digitalhumanities.org/dhq/vol/12/2/000389/000389.html.
Barth, Susanne, and Menno D. T. de Jong. “The Privacy Paradox – Investigating Discrepancies between Expressed Privacy Concerns and Actual Online Behavior – A Systematic Literature Review”. Telematics and Informatics 34, no. 7 (2017): 1038–58. https://doi.org/10.1016/j.tele.2017.04.013.
Bawden, David, and Lyn Robinson. “Essentially Made of Information: Concepts and Implications of Informational Privacy”. Information Research 24, no. 4 (15 December, 2019). https://informationr.net/ir/24-4/colis/colis1913.html.
Berglund, Karl. “Introducing the Beststreamer: Mapping Nuances in Digital Book Consumption at Scale”. Publishing Research Quarterly 37, no. 2 (June, 2021): 135–51. https://doi.org/10.1007/s12109-021-09801-0.
———. Reading Audio Readers: Book Consumption in the Streaming Age. Bloomsbury, 2024.
———. “Strömmade bästsäljare : Litteraturkonsumtion i digitala prenumerationstjänster utifrån Storytels användardata”. In Från Strindberg till Storytel: Korskopplingar mellan ljud och litteratur, ed. Julia Pennlert and Lars Ilshammar. Daidalos, 2021. 327–62.
Berglund, Karl, and Ann Steiner. “Is Backlist the New Frontlist?: Large-Scale Data Analysis of Bestseller Book Consumption in Streaming Services”. Logos 32, no. 1 (25 May, 2021): 7–24. https://doi.org/10.1163/18784712-03104006.
Bon, Esmeralda V., and Michael Burke. “Devices, Settings and Distractions: A Study into How Students Read Literature”. In Pedagogical Stylistics in the 21st Century, ed. Sonia Zyngier and Greg Watson. Springer International Publishing, 2022. 183–206. https://doi.org/10.1007/978-3-030-83609-2_8.
BookBeat. “BookBeat Integritetspolicy”. Last updated 11 June, 2021, accessed 5 September, 2024. https://web.archive.org/web/20240905141858/https://assets.ctfassets.net/4s7izhcdroyy/1eS2r2ZPSnZea7JmxvMZye/06851fe11603669bb6fe09debad30741/privacyPolicySE_20210611.pdf.
———. “Ljudböcker och e-böcker. Prova gratis! - BookBeat”. Accessed 5 September 2024. https://web.archive.org/web/20240625230537/https://www.bookbeat.com/se/about.
Clark, Stephen D., Becky Shute, Victoria Jenneson, Tim Rains, Mark Birkin, and Michelle A. Morris. “Dietary Patterns Derived from UK Supermarket Transaction Data with Nutrient and Socioeconomic Profiles”. Nutrients 13, no. 5 (May 2021): 1481. https://doi.org/10.3390/nu13051481.
Darnton, Robert. “What Is the History of Books?”. Daedalus 111, no. 3 (1982): 74.
Espino, Meredith Mays. “Sometimes I Feel Like Somebody’s Watching Me . . . Read?: A Comment On The Need For Heightened Privacy Rights For Consumers Of Ebooks”. UIC John Marshall Journal of Information Technology & Privacy Law 30, no. 2 (1 January, 2013). https://repository.law.uic.edu/jitpl/vol30/iss2/3.
Etikprövningsmyndigheten. “Etikprövning - så går det till”. Accessed 4 September, 2024. https://etikprovningsmyndigheten.se/for-forskare/sa-gar-det-till/.
European Commission. “A European Approach to Artificial Intelligence | Shaping Europe’s Digital Future”. Accessed 3 October, 2023. https://digital-strategy.ec.europa.eu/en/policies/european-approach-artificial-intelligence.
———. “Data Protection in the EU”. Accessed 4 July, 2023. https://commission.europa.eu/law/law-topic/data-protection/data-protection-eu_en.
———. “Questions and Answers – New EU Copyright Rules”. Updated 4 June, 2021, accessed 5 September, 2024. https://ec.europa.eu/commission/presscorner/detail/en/QANDA_21_2821.
Floegel, Diana, and Philip Doty. “The Library/Surveillance Interface”. Proceedings of the Association for Information Science and Technology 58, no. 1 (2021): 152–61. https://doi.org/10.1002/pra2.444.
Habermas, Jürgen. The Structural Transformation of the Public Sphere: An Inquiry into a Category of Bourgeois Society. Polity Press, 1989.
Have, Iben, and Birgitte Stougaard Pedersen. “Reading Audiobooks”. In Beyond Media Borders, Volume 1, ed. Lars Elleström. Springer International Publishing. 2021. 197–216. https://doi.org/10.1007/978-3-030-49679-1_6.
Henslee, Elizabeth. “Down the Rabbit Hole: E-Books and User Privacy in the 21st Century”. Creighton Law Review 49, no. 1 (December, 2015). http://hdl.handle.net/10504/84523.
Hes, Ronald, and John J. Borking. Privacy-Enhancing Technologies: The Path to Anonymity. Achtergrondstudies En Verkenningen. Registratiekamer, 1998.
Hoeyer, Klaus. “The Ethics of Research Biobanking: A Critical Review of the Literature”. Biotechnology and Genetic Engineering Reviews 25, no. 1 (1 January, 2008): 429–52. https://doi.org/10.5661/bger-25-429.
Horttanainen, Ella. “From Customer Data to Customer’s Data : Reverse Use of Customer Data as a Tool for Value Co-Creation”. Jyväskylän yliopisto, 2021. https://jyx.jyu.fi/handle/123456789/78665.
IFLA. Riding the Waves or Caught in the Tide? Navigating the Evolving Information Environment. IFLA, 2013. https://trends.ifla.org/files/trends/assets/insights-from-the-ifla-trend-report_v3.pdf.
Jenneson, Victoria, Graham P. Clarke, Darren C. Greenwood, Becky Shute, Bethan Tempest, Tim Rains, and Michelle A. Morris. “Exploring the Geographic Variation in Fruit and Vegetable Purchasing Behaviour Using Supermarket Transaction Data”. Nutrients 14, no. 1 (January 2022): 177. https://doi.org/10.3390/nu14010177.
Jones, E. M., N. A. Sheehan, N. Masca, S. E. Wallace, M. J. Murtagh, and P. R. Burton. “DataSHIELD – Shared Individual-Level Analysis without Sharing the Data: A Biostatistical Perspective”. Norsk Epidemiologi 21, no. 2 (13 April, 2012). https://doi.org/10.5324/nje.v21i2.1499.
Kallinikos, Jannis, Aleksi Aaltonen, and Attila Marton. “The Ambivalent Ontology of Digital Artifacts”. MIS Quarterly 37, no. 2 (2013): 357–70.
Kerpen, Daniel, Matthias Dorgeist, and Sascha Zantis. “Intersecting the Digital Maze. Considering Ethics in Cloud-Based Services’ Research”. In Research Ethics in the Digital Age: Ethics for the Social Sciences and Humanities in Times of Mediatization and Digitization, ed. Farina Madita Dobrick, Jana Fischer, and Lutz M. Hagen, 143–52. Springer Fachmedien, 2018. https://doi.org/10.1007/978-3-658-12909-5_15.
Kim, Nancy S. Wrap Contracts Foundations and Ramifications. Oxford University Press, 2014. https://doi.org/10.1093/acprof:oso/9780199336975.001.0001.
Kungliga biblioteket. “Bläddra”. Last updated 3 May, 2024, accessed 5 October, 2023. https://web.archive.org/web/20231005153806/https://www.kb.se/samverkan-och-utveckling/biblioteksutveckling/nationella-minoriteters-bibliotek/bladdra.html.
———. “Bibliotek 2022 : Sveriges offentligt finansierade bibliotek”. Kungliga biblioteket, 2023. Accessed September 2, 2024. https://urn.kb.se/resolve?urn=urn:nbn:se:kb:publ-707.
Kuzmičová, Anežka, Theresa Schilhab, and Michael Burke, “M-Reading: Fiction Reading from Mobile Phones”, Convergence 26, no. 2 (1 April, 2020): 333–49, https://doi.org/10.1177/1354856518770987.
Kvale, Live Håndlykken, and Peter Darch. “Privacy Protection throughout the Research Data Life Cycle”. Information Research 27, no. 3 (15 September, 2022). https://doi.org/10.47989/irpaper938.
Larson, Lotta C. “E-Books and Audiobooks”, The Reading Teacher 69, no. 2 (2015): 169–77, https://doi.org/10.1002/trtr.1371.
Lell, Helga María. “Human Rights and the Regulation of Anonymity. New Challenges to Law and Research”. In Research Ethics in the Digital Age: Ethics for the Social Sciences and Humanities in Times of Mediatization and Digitization, ed. Farina Madita Dobrick, Jana Fischer, and Lutz M. Hagen, 119–27. Springer Fachmedien, 2018. https://doi.org/10.1007/978-3-658-12909-5_12.
Lundh, Anna, Åse Hedemark, and Linnéa Lindsköld. “Critical Studies of Reading: Consolidating an Emerging Field of Research”. Information Research 27 (25 October, 2022). https://doi.org/10.47989/colis2232.
Mai, Jens-Erik. “Big Data Privacy: The Datafication of Personal Information”. The Information Society 32, no. 3 (26 May, 2016): 192–99. https://doi.org/10.1080/01972243.2016.1153010.
Mangen, Anne. “The Digitization of Literary Reading”. Orbis Litterarum 71, no. 3 (2016): 240–62. https://doi.org/10.1111/oli.12095.
Metcalf, Jacob, and Kate Crawford. “Where Are Human Subjects in Big Data Research? The Emerging Ethics Divide”. Big Data & Society 3, no. 1 (1 June 2016): 2053951716650211. https://doi.org/10.1177/2053951716650211.
Murray, Simone. The Digital Literary Sphere: Reading, Writing, and Selling Books in the Internet Era. Johns Hopkins University Press, 2018.
Reader Privacy Act, Pub. L. No. 1.81.15., 1798.90 California Civil Code § 1798.90 (2012).
Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation) (Text with EEA relevance), 119 OJ L § (2016). http://data.europa.eu/eli/reg/2016/679/oj/eng.
Rocher, Luc, Julien M. Hendrickx, and Yves-Alexandre de Montjoye. “Estimating the Success of Re-Identifications in Incomplete Datasets Using Generative Models”. Nature Communications 10, no. 1 (23 July, 2019): 3069. https://doi.org/10.1038/s41467-019-10933-3.
Rowberry, Simon. “The Limits of Big Data for Analyzing Reading”. Participations 16, no. 1 (May, 2019): 237–57.
SFS 1994:1219. Lag om den europeiska konventionen angående skydd för de mänskliga rättigheterna och de grundläggande friheterna [Swedish statute incorporating the European Convention on Human Rights]. http://rkrattsbaser.gov.se/sfst?bet=1994:1219.
SFS 2009:400, Offentlighets- och sekretesslag [Swedish Publicity and Privacy Act]. 40 kap. §3. https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/offentlighets--och-sekretesslag-2009400_sfs-2009-400.
SFS 2013:801. Bibliotekslag [Swedish Library Act]. http://rkrattsbaser.gov.se/sfst?bet=2013:801
Squires, Claire. “The Global Market 1970– 2015: Consumers”. In Companion to the History of the Book, ed. Jonathan Rose and Simon Eliot. John Wiley & Sons, 2019.
Steiner, Ann, and Torbjörn Forslid. “Bokhandeln mellan kultur och ekonomi”. In Litterära värdepraktiker, ed. Torbjörn Forslid, Jon Helgason, Christian Lenemark, Anders Ohlsson, and Ann Steiner, 67–125. Makadam förlag, 2017.
Stewart, Remy. “Big Data and Belmont: On the Ethics and Research Implications of Consumer-Based Datasets”. Big Data & Society 8, no. 2 (1 July 2021): 20539517211048183. https://doi.org/10.1177/20539517211048183.
Storytel. “Integritetspolicy för Storytel”. Last updated 12 September, 2022, accessed 5 September, 2024. https://web.archive.org/web/20240905122618/https://legal.storytel.com/se/sv/documents/privacy-policy?request_locale=se.
———. “INTEGRITETSPOLICY FÖR STORYTEL” (previous version). Last updated 12 June, 2019, accessed 21 July, 2022. http://web.archive.org/web/20220721162819/https://www.storytel.com/se/sv/documents/privacy-policy.
———. “Om Cookies – Storytel”. Accessed 5 September, 2024. https://web.archive.org/web/20240905123249/https://www.storytel.com/se/cookies.
———. “Om oss”. Accessed 11 September 2024. https://www.storytelgroup.com/sv/om-oss.
———. “Storytel Användarvillkor”. Last updated 13 September, 2023, accessed 5 September, 2024. https://web.archive.org/web/20240905122304/https://www.storytel.com/se/sv/documents/terms-and-conditions.
Svenska bokhandlareföreningen and Svenska förläggareföreningen.“Bokförsäljningsstatistiken 2022 ... och utvecklingen de senaste fem åren (2018-2022)”. 2023: 50–51. Accessed September 2, 2024. https://forlaggare.se/wp-content/uploads/2023/02/Bokforsaljningsstatistiken-2022.pdf.
Tattersall Wallin, Elisa. Sound Reading: Exploring and Conceptualising Audiobook Practices among Young Adults. Högskolan i Borås, 2022. http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-27165.
Tattersall Wallin, Elisa, and Jan Nolin. “Time to Read : Exploring the Timespaces of Subscription-Based Audiobooks”. New Media and Society 22, no 3 (2019). http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-21524.
UN General Assembly. “Universal Declaration of Human Rights.” 217 (III) A. 1948. Accessed 2 September, 2024. https://www.un.org/en/about-us/universal-declaration-of-human-rights.
Vetenskapsrådet. Good Research Practice. Vetenskapsrådet, 2017.
Zuboff, Shoshana. The Age of Surveillance Capitalism: The Fight for the Future at the New Frontier of Power. Profile Books, 2019.
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